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It's utterly sickening that she claimed that some people with idiopathic illnesses "do not even want to be cured" and enjoy "secondary gains".The most depressing thing about this document is just how out of touch many doctors are. They have no interest whatsoever in listening to patient...

FSS FFS?

Medicine is the only field where "You're lazy, crazy, or faking it" means "I don't know"

Dying heart cells? That sounds scary. But strenuous exercise is good for you. Do they just grow back?

This is one of the stupidest papers I've seen in a while.

They're basically saying that, and trying to be subtle about it.

Now we have a government agency explicitly telling clinicians this: Unless healthcare changes, I don't know how useful their guidance will be for people with long Covid. I refuse to discuss mental health with all of my doctors. I openly tell them that it's because doctors have used it against...

That's horrific. Your immune system is literally burning holes in your brain, and it's psychosomatic? Nobody who says that should be practicing medicine or conducting research.

Ed Yong nailed it again, writing almost an entire article about PEM. He acknowledges all the major difficulties of living with it: The inability to do things you want, the inability to do activities to manage your mental health, that doing one small thing means you can't do something else later...

MEAction's rapid response is strongly worded and good on them for calling it like it is. BPS doctors are absolutely ableist and are harming us. But if the BMJ isn't allowing MEAction to use this tone, I hope the BMJ will tell them what to change and they get to publish an edited version.

Ooh, awesome. Yong never disappoints.

Anyone who writes about pain catastrophizing deserves a cat ass trophy.

Oh, I read about the Lyme vaccine. A bunch of people blamed the vaccine for common symptoms with no proven connection to the vaccine, and the manufacturer took it off the marker because it wasn't a popular enough product to fight over it. Pretty depressing.

This is one of the most disturbing ME papers I've ever read. A 27 year-old man came into a doctor's office, very anxious, with a multitude of symptoms, including textbook PEM. He's convinced he has ME, and his symptoms are glaringly obvious--PEM and being severely debilitated, unable to work...

Missing the meaning and provoking resistance; a case of myalgic encephalomyelitis https://academic.oup.com/fampra/article/13/1/106/512679?login=false By Chris Butler and Stephen Rollnick, published 1996 Abstract Background The interaction between a clinician and a patient who put his problems...

Wouldn't the possibility of debilitating sequelae make vaccines more attractive?

Lyme Disease is pretty nasty. I got it once, years before I got ME. There was no bullseye rash and the symptoms came one after another--I didn't seek treatment immediately because the symptoms didn't appear to have a common cause. At different points, I had cold-like symptoms and dizziness...

Thank heavens. Then they'll be familiar with ME when they become doctors.

This is really good. Dr. Sommerfelt strikes me as a scientist who values meaningfully involving patients to gather their experiences, and understands and applies how they explain the illness--that PEM causes a reduction in function for several days.

Another excellent video on long Covid from Ed Yong and PBS. Discusses all the aspects that are important to patients.