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  1. RedFox

    Genome-wide Association Study of Long COVID, 2023, Lammi et al.

    Agreed. If anything, very poorly understood diseases might be the best candidates for a GWAS, because when studying the whole genome, we don't need to know where to look.
  2. RedFox

    Review Prevalence of Neuroradiological Abnormalities in First-Episode Psychosis A Systematic Review and Meta-analysis 2023 Blackman et al

    Their use of terminology is odd here. Presumably, all psychosis has biological origins, some understood, others not. But it's strange that only understood causes are called "organic." A better term would be identifiable cause?
  3. RedFox

    Ampligen in Phase 2 Clinical Study for the Treatment of Post-COVID Conditions

    AIM ImmunoTech Enrolls and Doses First Subject in Phase 2 Study Evaluating Ampligen® for the Treatment of Post-COVID Conditions https://aimimmuno.com/aim-immunotech-enrolls-and-doses-first-subject-in-phase-2-study-evaluating-ampligen-for-the-treatment-of-post-covid-conditions/ They're off and...
  4. RedFox

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    You might be biased but it's a good bias :-). DecodeME needs every mention it can get.
  5. RedFox

    Lightning Process - discussion thread

    That's as evil as the devil. Potentially costing employees huge amounts of disability insurance benefits when they're too ill to work.
  6. RedFox

    Hydrolyzed Marine Collagen powder

    If this is something you eat, it will do nothing. Collagen is a protein, meaning your digestive system will break it down into its component amino acids before it's absorbed.
  7. RedFox

    Long COVID and possible preventive options, 2023, Sebők, Gyires

    I'm surprised they didn't mention the metformin study.
  8. RedFox

    Article: Science: Is exercise actually good for the brain?

    I guess the myalgia got better.
  9. RedFox

    Long Covid drug BC-007 research news

    The first patients have been given the drug: Translated:
  10. RedFox

    The nanoneedle salt stress test – too good a clue to leave abandoned on the lab bench?

    I'm a strong advocate for the nanoneedle. The results are so dramatic we need to keep developing it until it's either a validated test for ME or until we understand what failed. I would say: Develop a more efficient nanoneedle machine that can test many samples at once Validate it by doing...
  11. RedFox

    Speculations about the genetics of ME/CFS and DecodeME

    Let me make a prediction. Recently, a GWAS of long Covid found an association with FOXP4. I bet that DecodeME will find an association between FOXP4 variants and ME, at the genome-wide significance level. Also, I think most of the genes Decode finds will be for the immune and nervous systems.
  12. RedFox

    First major survey of doctors with Long Covid reveals debilitating impact on health, life and work, 2023, BMA media team

    Better late than never. Now's a better time than any, because post-viral illness has come for their own house so to speak.
  13. RedFox

    Suramin as a possible treatment for Autism, ME CFS and Long Covid

    Recently the BRAIN Foundation interviewed PaxMedica's CEO on Suramin's potential for autism. Suramin for Autism: An Update for 2023 and Beyond https://www.paxmedica.com/update/20230619
  14. RedFox

    Closed UK: DecodeME updates, was recruitment thread.

    There's probably one in America too. I bet awareness is a big problem. I'm sure interest in participating in studies is low among the general public.
  15. RedFox

    Closed UK: DecodeME updates, was recruitment thread.

    That's really good. I'm very surprised that there's currently no system that lets you register as interested in doing research, and sends you an e-mail when a study that might interest you is recruiting.
  16. RedFox

    Long Covid drug BC-007 research news

    Berlin Cures has hired a new CEO: Berlin Cures Welcomes Oliver von Stein as New CEO to Lead Next Phase of Innovation and Growth. https://www.berlincures.com/en/news/new-ceo
  17. RedFox

    JAMA: Skeptical of Skeptics, English, 1991 (physician with CFS)

    The body is weirdly simultaneously resilient and pathetic. Get in a car crash and break a bunch of bones? You might survive. Blood decides to clot somewhere in your heart or brain? Oops. Medicine is much the same way. People live to 90 because we can treat infections, heart disease, diabetes...
  18. RedFox

    Pre-pandemic activity on an ME/CFS support forum is highly associated with later activity on a long COVID support forum ..., 2023, Meyerson, Hoyle

    When I saw this, I was worried it would be a psychosomatic study making some disgusting claim like, "People with ME think they have long Covid because they're constantly worried about their health and think they're sick" but I was pleasantly surprised. This study hits on all the major aspects...
  19. RedFox

    ‘I am just a shadow of who I used to be’—Exploring existential loss of identity among people living with chronic conditions of Long COVID, 2023, Fang

    I found reading this paper very comforting. Knowing other people who experienced similar illness had many of the same thoughts and feelings. It's extremely difficult, emotionally, to live with severe illness, especially others don't view your illness as legitimate. I personally feel a profound...
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