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I'm going to second everyone else's concerns. Stem cells have just one proven application, and there's a lot of quacks out there claiming they're a cure-all. It's fairly unlikely this will lead anywhere.

Source: https://me-international.org/en/blog/clarity-for-all/ as quoted in DX Revision Watch's earlier post I disagree with that. ME, CFS, and ME/CFS are just different names for the same thing. And a code for PEM is useful for people experiencing PEM not long enough to qualify for an ME...

So...today we learned that in America they're testing an antibody drug and in Britain they're testing breaks from sitting? Talk about a microcosm of LC research.

Anti-SARS-CoV-2 Monoclonal Antibodies for Long COVID (COVID-19) (outSMART-LC) https://clinicaltrials.gov/ct2/show/NCT05877508 Summary: This company, Aerium Therapeutics, is trying antibody against the coronavirus in long Covid. It's double-blind with an expected enrollment of 30, with about 20...

Post copied from the LC in the media thread

And I thought American morning shows were crass.

He doesn't get it. They got over a billion dollars over two years ago and haven't started a clinical trial. Trials of generic drugs would be cheap and you could even do them remotely. Has the FDA announced incentives for long Covid? Proposed ME or LC treatments should be designated as...

That's scary. While making definitive statements about a stranger's coworker's health is impossible, it reminds me of the story of Lee Holloway. He co-founded Cloudflare, a massive networking company, and got early-onset dementia in the middle of his career. When his personality changed, people...

I second requesting an oral sedative.

I am now that I read this abstract.

They're probably using an extremely vague definition of FND to reach that conclusion, just like how BPS researchers use extremely vague definitions of ME. Real FND requires very careful evaluation. Their definition is probably "we found the most ableist neurologist we could, and he opined 1/6 of...

It's utterly disgusting how doctors treat people with chronic pain. Acting like the pain is a character issue. Disturbing. Medicine exists to mitigate pain and suffering. Not only is chronic pain dismissed, it's underfunded. Chronic pain is such a common and serious problem that developing...

Too late, I've already progressed to thinking I'm seriously ill.

Based on that graph...these researchers are looking up at the stars and drawing constellations.

A local park had so many ducks people complained about it. They were probably fed up with seeing poop everywhere. So they killed some of them. Pretty sad.

So CBT made patient feel a little better emotionally but didn't help their autoimmunity/brain damage/coagulopathy/whatever LC actually is? Color me surprised.

Why don't you stop telling me to watch ducks in a pond, medicine, and work on a drug that will let me live a meaningful life again? Do you know how it feels to suffer from ME? No. You don't and you refuse to listen. You want me to watch ducks? Take your stupid ducks and throw them to bottom of...

I think people are confusing cumulative and incremental risk. Imagine this: Infections: 1, risk: 10% Infections: 2, risk: 15% Infections: 3, risk: 18% Infections: 4, risk: 19% Infections: 5, risk: 20% The cumulative risk continues to increase indefinitely, getting closer and closer to 20%, but...

If you can achieve this noninvasively, like with neuroimaging, then now you're talking. There's also EEGs, but they don't measure much from deep inside the brain.

Did someone ring? If they actually screen for PEM, exclude patients who have it and remove those who develop it, it won't be dangerous to pwME. However, I don't trust they will do that in practice because we've been burned so many times before. Also, our opportunity for learning is pretty...