Pretty bad phrasing. Severe LC is every bit as bad as cancer or a stroke. Getting a debilitating case of LC at a young age will cut more good years off your life than cancer when older.
I knew you'd have a thorough criticism of this. Any research based on health records will be biased through the lens of doctors, which means some symptoms will be missed or recorded as something else.
There's many ways to assess the current situation and I've reached the opposite conclusion. Long Covid hasn't heightened interest BPS. In reaction to long Covid, people have brought BPS ideology into the light of day and mocked it. Just this February, David Putrino was on national TV here...
This sounds like a real mess. This reform would only give you UC without requiring you to work if you get PIP, right? But PIP is supposed to be for people who have trouble taking care of themselves, which is a more stringent standard than being unable to work full-time. If you're ill enough that...
Was I wrong to assume? It sounds like they know how to take care of PwME. But maybe their role is smaller than I thought? I'm sorry for getting it wrong.
I'm very, very proud for the people of the Island of Man working together for so long to open this service. I'm proud that they created a clinic that has biomedical doctors improving care by listening to patient experience, and that recognizes the heavy overlap between ME and LC by merging them...
Video transcript:
Announcer: ME Support (IOM) was established in 1988 by Barbara and Robin Proctor, parents of Ean Proctor, after their horrific experience on the Isle of Man.
[Video from Frontline, Channel 4]
Interviewer: At 12, Ean got ME and became paralyzed and mute. But because no...
Gosh, you gave me a brilliant idea! We just need to apply this to everything. You ever notice how sick people are always going to the doctor? All we need to do is get rid of doctors, then they'll stop being sick. We'd save a ton of money too.
This is a joke. Only two mentions of PEM, no mention of pacing. Claims fatigue is the hallmark symptoms. Make it sound like lifestyle modifications will do something.
This is blithely stupid. If someone asked me why I applied for disability, I'd say it's because I tried to work continuously for three years, in two career paths, and both ended in failure. I tried extremely hard, it's not like I didn't apply myself. And everyone needs some sort of income...
This is why ME needs to be called ME, SEID, or anything but CFS. No friends or family have ever dismissed me after saying I have myalgic enceophalomyelitis. When we choose the term ME, we're deliberately saying it's a serious disease, and it's not fatigue.
My transcript for y'all
Male anchor: And next, we're gonna continue our series on long Covid in children. And why so many are suffering long-term disability. More than 70,000 young people are affected in this country, and yet so little is known about what causes it and how to treat it.
Female...
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