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He thinks diet, supplements, and getting enough sleep is going to do it.

Wow, she lost 13kb of her mtDNA; a healthy person has 16kb. I can't believe that's survivable. If before I saw this article, you asked me what would happen to someone who didn't inherit 80% of their mitochondrial DNA, I would have said they wouldn't even be born. How is this possible?

I knew you'd have a thorough response to this study. I didn't know you could pack it into two sentences.

When I met with him, he explained his poorly-written advice. He specifically said not to exercise to the point it gives you PEM, but that his (unevidenced) lifestyle regimen would expand your energy envelope and allow you to "pace up" and gradually return to exercise. And that Frodo Baggins is...

Retinal tissue and microvasculature loss in COVID-19 infection By Fritz Gerald P. Kalaw, Alexandra Warter, Melina Cavichini, Darren Knight, Alexandria Li, Daniel Deussen, Carlo Galang, Anna Heinke, Veronica Mendoza, Shyamanga Borooah, Sally L. Baxter, Dirk-Uwe Bartsch, Lingyun Cheng & William...

Transcribed. YouTube's auto-generated captions, but touched up. Male anchor: Now all this week we are highlighting the devastating effects long Covid is having on children. Young people have been left disabled, unable to attend school and many have struggled to access treatment on the NHS...

Here's a transcript of the update on the FMT trial. It's audio only. Announcer: ...7 minutes to 7:00 is the time. Could there be hope in a science park here in Norwich for people with ME? And too for other conditions such as long Covid, that seem mysterious and damaging and ill-understood...

Excellent work, Wyva. You hit on all the important points while keeping the article concise.

At least they avoid talking about psychomatic stuff.

If you've had an untreatable disease for 30 years, it would difficult to justify expecting to recover. It's odd they consider expecting to recover a good thing. As Trish pointed out, someone who expects to get better is likely to be disappointed or blame themself.

It never stopped the computer people.

This is all nonsense. When the find the smoking gun, like a chemical process that causes PEM, or when a drug for ME is discovered, the BPS model of ME and LC will disappear into the dustbin of history. The BPS scientists (I'm being a tad generous by calling them that) will scatter to another...

Finally, a paper on this!

It's encouraging that doctors are becoming more aware of PEM and that doctors like here are getting coverage and explicitly saying LC isn't a psychological condition. Here's a transcription. Binita Kane: Yeah, and I think to understand why we're in this situation, you always need to look back...

Maybe mindfulness cures the immune, neurological, metabolic or whatever dysfunction that causes long Covid. Perhaps it can regrow brain cells, erase tumors, restore sight to the blind and regrow lost limbs. Maybe we all just need to meditate for 15 minutes a day, and we'll become immortal and...

I read the summary. It's pretty interesting. I wish the Decode team the best, and I hope we find significant results.

I experience a sensation of time speeding during severe PEM. I might look at the clock and think, wow, 5 hours passed. I don't find it incredibly jarring though. I wouldn't describe it as completely "losing" periods of time.

I don't understand the point of health insurance if they can just deny stuff after the fact. Hearing all these horror stories, I feel relieved I never had private insurance. (Medicaid then Medicare) ProPublica suggested another article with a similar theme: UnitedHealthcare Tried to Deny...

I've seen two rheumatologists. One was at a local teaching hospital in the US. She told me she doesn't manage ME, and to do self-help graded exercise therapy. I told her that wouldn't work and that the PACE trial proved it. She ordered a few tests for autoimmune disorders. I was positive for...

If autism is associated with changes in how microglia or astrocytes behave, and if ME turns out to be a disorder of these cells, it might explain my case. I got ME without a clear trigger. Speculating wildly, I wonder if the intense stress I experienced at the time of my onset was enough to tip...