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  1. RedFox

    Post-operative Incomplete Quadriplegia Caused by Conversion Disorder in a Female After Gynecological Surgery: A Case Report 2022 McCrackin & Weiss

    The authors don't seem to have a modern understanding of FND. We don't call it conversion disorder anymore. If I understand the modern research, it points to an issue in the brain, perhaps with connectivity, so it's unsurprising that moods/stress can be involved. (Mental states affect my tics...
  2. RedFox

    Orthostatic Intolerance after COVID-19 Infection: Is Disturbed Microcirculation of the Vasa Vasorum of Capacitance Vessels... 2022, Wirth and Lohn

    This is a hypothesis paper, meaning it's a new perspective on existing research. The idea that OI is caused by a specific sort of vascular dysfunction is pretty novel and interesting. What types of experiment could help confirm or disprove it?
  3. RedFox

    From academic success to cognitive disability

    I made some small contributions to what later became the AV1 video codec, widely used to compress video by companies such as YouTube and Netflix. I worked on MSA LUNAR, a device that can help locate firefighters in danger. When I was 17 I built high-performance FM and TV antennas from designs I...
  4. RedFox

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    I read this garbage so you don't have to. She discusses both the psychosomatic and physical models of ME and LC with a strong bias towards them both being psychosomatic, but in a more modern sense where emotions are claimed to make something actually go wrong, like FND. They feature a story of a...
  5. RedFox

    I'm a Neurologist, Hear Me Roar — If I wasn't believed when seeking care, what chance do non-physicians have?

    I used to think of doctors as especially competent because of their rigorous training and role in protecting people's lives. I've seen many other professionals mess things up. Software developers building entire systems out of cheap hacks, electricians doing work that isn't up to code, useless...
  6. RedFox

    The Role of Subjective Expectations for Exhaustion and Recovery: The Sample Case of Work and Leisure, 2022, Schüttengruber & Freund

    This is absolutely not how I modeled my own energy levels when I was a healthy autistic person. The main factors I considered were demands on social interaction, executive function, and sensory processing.
  7. RedFox

    Fatigue, post-exertional malaise and orthostatic intolerance: a map of Cochrane evidence relevant to rehabilitation for people with... 2022 Arienti

    This is pretty bad. You can't analyze research in a dozen different diseases and apply it to long Covid by just compiling it.
  8. RedFox

    Cochrane “evidence relevant to” rehabilitation of people with post COVID-19 condition. What it is and how it has been mapped... 2022 Negrini et al

    The WHO guideline actually shows a good understanding of PEM. They devote an entire page to it and explicitly recommend against GET (pg. 110):
  9. RedFox

    OpenAi's new ChatGPT

    I've seen this AI do remarkable things. Someone asked it to write a simple program in Rust and it did, the only error being omitting a statement to include a library.
  10. RedFox

    CDC announces Infection Initiated Chronic Conditions Understanding and Engagement (ICUE) program

    It sounds like they're just hosting a bunch of meetings between ME, long Covid, etc. advocacy groups. I see a possibility for benefits, but not concrete or direct ones.
  11. RedFox

    Is There Anyone (UK) On The Forum who Is Prescribed Medical Marijuana?

    That's the problem with medical marijuana. There's no real evidence base for it. And it's hard to research because of legal issues.
  12. RedFox

    USA: Long Covid clinics - general discussion

    I've observed a trend towards increasing use of ME, and it's continuing: They want to set up Centers of Excellence for long Covid: Due to the lack of treatments, the main benefit will be not harming patients with CBT/GET. I hope this gets expanded to ME/CFS, as getting specialist care is...
  13. RedFox

    Considerations in establishing a post-mortem brain and tissue bank for the study of ME/CFS: a proposed protocol, 2014, Nacul et al

    I'm disappointed nobody has put this into action. I would absolutely want samples of my tissue used for ME research if I die when ME is still poorly understood.
  14. RedFox

    COVID-19 and elite sport: Cardiovascular implications and return-to-play 2022 Faghy et al

    Unfortunately, no mention of PEM. They also seem to downplay the effect of long Covid on previously healthy people: In context, they balance this with anecdotes of sidelined athletes and a call for more research, but I still think this sentence is unjustified. Also, no mention of PEM. Most of...
  15. RedFox

    Understanding Long COVID; Mitochondrial Health and Adaptation—Old Pathways, New Problems 2022, Nunn et al

    When people say this, I take it this way. They're trying to dispel the psychosomatic notion that they're hypochondriacs, deconditioned, or afraid of exerting themselves. If the BPS model was true, we'd basically never see athletes get ME.
  16. RedFox

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Vocabulary 2022 Vasudevan et al

    Additionally, how much one "markets" their symptoms can have a large difference in how others perceive them. I only describe my symptoms in terms consistent with the truth I have a serious medical condition. For example: "I have brain fog" vs "I have cognitive trouble." "I'm too tired to do...
  17. RedFox

    Approach to the child with fatigue: A focus for the general pediatrician 2022, De Nardi et al

    "Symptom onset must be gradual"...huh?! We know ME onset in adults is often shockingly sudden, and I'm sure it's similar in kids. What are the authors thinking?
  18. RedFox

    Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al

    This would be very useful for gov't agencies around the world once translated. Even in the United States, we don't have a specific listing for ME/CFS. On advocacy task I'd like to see is campaigning for one. A listing that would automatically approve people if PEM significantly limits their...
  19. RedFox

    Long Covid in the media and social media 2022

    That's bad, but it's good to see a paper calling them out.
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