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I think you might need another questionnaire for that.

Neato. But I tend to avoid attaching myself to any one hypothesis of long Covid, so who knows if it will work.

It sounds like you could learn a decent amount about supporting young people with ME/CFS from this study. Obviously it's generally difficult to accommodate because without energy you can't do anything, but I'm sure a decent number of people out there will be able to explain how they managed to...

Few to none of them have severe ME because they couldn't participate in whatever research we're doing. Almost all of them have experienced significant grief/loss related to their illness. And medical gaslighting. Most became ill between about 15 and 35. Almost all of them have alcohol...

This is a racket.

It's embargoed until next year so I don't know.

If they just used machine learning, and don't have separate training and validation datasets, it could just be overfitting (looking at irrelevant differences)

We need a drug badly and we should try anything.

"Rhythmic power washing in the brain" sounds rather dangerous.

In ME Assoc: How Many People in the UK have ME/CFS?, Simon M said: Wow, if 100k Brits have a diagnosis under G93.3, that means DecodeME managed to scoop up almost 20% of the entire population with ME. I don't know how often researchers try to recruit a significant fraction of all eligible...

I don't know if it will show anything, but it sounds worth investigating.

It should be illegal to operate on a person's genitals unless they consent, or it is medically necessary. This includes pelvic exams (not surgery but broadly similar), sterilization (which has been done non-consensually in the past), circumcision and other cosmetic genital surgeries, and...

Of course more educated people are more likely to be diagnosed with ME/CFS. Because they can do the research and self-advocacy necessary to get diagnosed.

Medical aid in dying should be easily accessible to anyone with a serious physical or mental health condition. My body, my choice. Just because social or economic factors are factors influencing some people's decision to get MAiD doesn't justify denying bodily autonomy to everyone.

I think studying having children and ME/CFS is valuable, as this area isn't well-researched, despite the fact that raising a family is a major life priority for many people, illness or not. Some people may decide against having kids due to ME/CFS but others may want to, be have a pool of...

I sent a letter to my Senators Casey and Fetterman.

Your hypothesis attempts to account for every feature of ME/CFS, especially PEM, which is sorely missing from most hypotheses. I wonder what experiments could be done to prove or disprove this model. DecodeME might be helpful if it highlights certain immune pathways.

I don't understand what these people are even on about. If they did a HIIT workout and experienced no PESE, they don't have PESE...it's fine for them to exercise. Addendum: And when these people talk about PEM, they often have no idea what PEM even is. They're so narrowminded that they think an...

No real news. They're just trying to keep investors "in the loop" and build PR.

I don't drink alcohol but I'm also sensitive to caffeine. It's hit-and-miss. Sometimes a cup of black tea keeps me awake without side effects, but other times I get jittery.