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Well, my doctor ordered so it's obviously medically necessary. I tried contacting a bunch of VO2Max labs around me, but they all ghosted or said they couldn't do it. Same thing happens when I try to get it through a medical clinic. I called both AHN and UPMC, and personally talked to the people...

So, I need a 2-day CPET. My doctor ordered one for me. Problem is, I can't find anyone to do it. I live in Pittsburgh, Pennsylvania. My insurance is Medicare. First I called both major health systems in my city, and they both said they can't do it. Then I called the Cleveland Clinic, and they...

Is this a freaking joke?

I wonder how many Americans are getting SSDI for LC. It's probably also a small number, as the US has similar rules about duration: Your illness must be expected to last at least 12 months (or result in death in that timeframe). You also need "objective medical evidence" to back up any...

It might need a little formatting cleanup before publication: The link to the old guideline should probably be a citation?: Also there are some points where it seems like bullet points are missing. I'm not sure if that's a good choice, a bad choice, or a problem with my PDF reader. I think...

The authors of the paper don't believe PEM only happens after what a health person would call exercise. They even recognize mental PEM:

Going in the right direction, but could be more explicit about why GET is a bad idea. The probably didn't detail the rationale behind all this because it's a group of non-BPS clinicians who are all on the same page.

Oh no. They treated him with CBT/GET basically. They also insist ME is a diagnosis of exclusion, which isn't the modern view. (Nowadays, we use PEM as the cardinal symptom) They also use psychologizing language in the description of his symptoms, such as "Uninterested to talk to family members"...

Has anyone even bothered to study mental healthcare with the same rigor as physical healthcare? Some autism research is just as bad as the PACE trial. They use the wrong outcome measures, like reduction in signs and symptoms, which is useless, because autism is not a disease. So young children...

What are their criteria for recovery rate? 40% simply not believable on its face. Most of the people I know with mental health problems have them for years or decades despite significant treatment.

Myth #4 is "Long COVID is all in the mind":

Google Translate link: https://www-nrk-no.translate.goog/livsstil/forsokte-selvmord-etter-me-kurs-1.7891470?_x_tr_sl=auto&_x_tr_tl=en&_x_tr_hl=en-US&_x_tr_pto=wapp Spoiler because some will find the story upsetting: This is direct, rapid, obvious harm caused by BPS. It's not the only form of...

This only happens if you have AIDS--that is, your infection is so advanced that your immune system is seriously weakened. At the point, people start getting opportunistic infections or cancers that are rare in healthy people. But if you're on antivirals that work, you're fine. Generally, there's...

I shouldn't have read that, now I feel horrible. I feel like I waded through a sewage pond.

And even if we knew the risk factors, they wouldn't mean much to someone who already has ME. Though I'm sure some people will enjoy finding out what genes the have for curiosity's sake.

Chalder and Sharpe still at it? Sigh. Also, we need to stop treating ME as a diagnosis of exclusion.

Context: These figures are for the US. For reference, our population is 332M, around 160M of whom work. Let's consider the implications of some of these stats: 2.88M completely out of work due to long Covid (That's 0.87% or 1 in 115 Americans, 1.8% or 1 in 56 workers) 1.60M forced to work...

There's also plenty of places in America hardly did anything about Covid, even in early 2020, like Florida and Arizona.

If ME was contagious we probably would have found out by now. ME is neglected but we do a lot of surveillance of infectious diseases.

This is horrifying. 4%--1 in 25--of the papers she reviewed appeared obviously edited?! We need fundamental reforms to the scientific process, if people are even tempted to do this. For example, encouraging published work to be quality over quantity, or regarding negative results as equally...