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  1. RedFox

    Science has a Nasty Photoshopping Problem. Elisabeth Bik, NYT

    A good example of how autistic traits can be valuable to society.
  2. RedFox

    Doctors’ attitudes toward specific medical conditions, Scoles, 2022 (includes ME/CFS)

    That's absolutely true. The study revealed a dumpster fire, but when you zoom out, you realize the whole city is burning. It's not just doctors ranting on the Internet. Intolerant doctors psychologized ME, which caused neglect from science and medicine, and the awful outcomes resulting from a...
  3. RedFox

    Doctors’ attitudes toward specific medical conditions, Scoles, 2022 (includes ME/CFS)

    You're exactly right here. In the distant past, nothing was medically explained. We just gave people herbs to balance their humors (or whatever) and hoped for the best. Then we began attacking disease more scientifically and began discovering causative agents and biomarkers. The diseases we...
  4. RedFox

    Doctors’ attitudes toward specific medical conditions, Scoles, 2022 (includes ME/CFS)

    IDK man, I just love the secondary gains. Living on 20% of what I'd be making if I wasn't disabled is super fun /s
  5. RedFox

    Doctors’ attitudes toward specific medical conditions, Scoles, 2022 (includes ME/CFS)

    I'm shocked that depression is the second most-stigmatized condition. We like to believe doctors take it seriously nowadays. My healthcare team always seemed to. How can you hate people for being depressed? That's horrifying. Also, how did fibro lose to depression in this sordid race?
  6. RedFox

    Holistic or harmful? Examining socio-structural factors in biopsychosocial model of chronic illness,‘MUS’& disability, 2022, Hunt

    I wonder why social insurance agencies around the world don't fund more research frankly. If they did good research, it could be a win-win. People with disabilities don't want to sit around and be a cost to society, they want to be healthy again and work.
  7. RedFox

    Long Covid in the media and social media 2022

    Video transcript: Brian Bennett (Senior White House Correspondent, TIME): Parents who have children going through long Covid around the country and a lot of parents are finding out that their doctors don't know much about long Covid. There are only about a dozen clinics around the country that...
  8. RedFox

    Long Covid in the media and social media 2022

    This is a person discussing long Covid on the BBC. The headline is "How is the government going to tackle the NHS and social care crisis?" Video transcript: Helen Oakleigh: As someone who has been left disabled by long Covid--I was completely fit and health before, and now my life as I knew it...
  9. RedFox

    Effect of herbal cake-separated moxibustion on behavioral stress reactions and blood lactic acid level and muscular AMPK/PGC-1α signaling.. 2022 Xu

    Depressing all around. They wasted a bunch of money, and traumatized a bunch of poor rats to write a junk science paper about quack medicine. (I'm not against animal research in general but this was for nothing)
  10. RedFox

    United Kingdom: ME Association news

    Transcribed for readability:
  11. RedFox

    Long Covid in the media and social media 2022

    If you view the image directly, it's fairly readable.
  12. RedFox

    Long Covid in the media and social media 2022

    The text of the Tweet (from Google translate) The infographic is in English. Edit: No mention of PEM unfortunately.
  13. RedFox

    Protocol RECOVER Treatment Study: Paxlovid for long Covid

    The problem is that nirmatrelvir, the drug that stop the virus from reproducing, is broken down by the liver very quickly. The ritonavir just services to slow down metabolism of the drug by keeping that liver enzyme "busy." Purposely creating drug interactions like this has been heavily...
  14. RedFox

    Protocol RECOVER Treatment Study: Paxlovid for long Covid

    My opinion: I'm not sold on viral persistence, so my expectations are modest. But this trial is rigorous! It should be big enough to deliver definitive results. It might be the largest treatment trial on post-viral conditions ever. (PACE enrolled 641 for reference, barely a third as many.) I'm...
  15. RedFox

    Protocol RECOVER Treatment Study: Paxlovid for long Covid

    The RECOVER Initiative is doing a trial on Paxlovid for long Covid. Here's the listing on ClinicalTrials.gov: SARS CoV-2 Viral Persistence Study (PASC) - Study of Long COVID-19 (PASC) Highlights: Double-blind multi-center trial in the US 1700 participants They'll take the drug for 15 days...
  16. RedFox

    News from France

    I get the impression that France isn't good with chronic conditions. Some years back, I heard of doctors in France trying to psychologize autism.
  17. RedFox

    Experimental Monoclonal Antibodies Show Promise Against Epstein-Barr Virus

    I'd like to see a study on EBV and ME similar to the MS one. Maybe EBV is a requirement to get ME as well.
  18. RedFox

    Series of Guardian articles on Long Covid, October 2022

    You're spot on here. 277k disabled by LC. 210k didn't visit a LC clinic, but those who did got very little. We need to research treatments badly.
  19. RedFox

    The Interactive Effects of Post-Traumatic Stress Symptoms and Breathlessness on Fatigue Severity in Post-COVID-19 Syndrome 2022 Harenwall et al

    So close, yet so far. I have ME and PTSD. Having flashbacks when your body is frail, trying to regulate extreme emotions when you're cognitively impaired, or having nightmares when a good night's sleep is barely restful, is freaking exhausting. But they're painting with too broad a brush...
  20. RedFox

    Protesters So Ill, They Couldn’t Get Arrested, NYT

    Yes, usually articles will get one or two basic things wrong about ME and PEM. But she absolutely nailed it here. The only unclear thing was this sentence: This could read as "her PEM was so bad she couldn't think clearly, let alone do more complex cognitive tasks," but some people might read...
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