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Really sad. She's not the first hockey player to be sidelined by long Covid either. Brandon Sutter hasn't played since the 2020-21 NHL season. Then there was Dr. Mark Vink, a major ME advocate.

Then I hope whoever comes next will speak out about ME and LC like Sajid Javid did.

Liz Truss has resigned as Prime Minister. While speculating about the next PM is way beyond the scope of this forum, I'm wondering, does this mean the UK is likely to get a new health minister?

Disturbing in light of the fact that medicine should be all about helping people prevent, treat, and live well with disabilities.

How about I transcribe this for those lack the time or health to watch: Dr. Mason-Whitfield: I really want to apologize to you too, on behalf of some of my medical colleagues because as senior clinicians. We are being laughed at by some of our colleagues in clinic, but we're quite stroppy...

In this preprint, Dr. Pretorius and her colleagues found yet more signs of excessive clotting in people with Long Covid. In the past, the found the microclots. Now they're showing increases in molecules associated with clotting as well. These findings are encouraging, as it shows something's...

Merged thread "Long-Covid drug from Berlin is being tested" (Update on BC-007) Long-Covid-Arznei aus Berlin geht in die Prüfung https://www.faz.net/aktuell/wirtschaft/unternehmen/studie-fuer-das-long-covid-mittel-bc007-ist-finanziert-18390943.html Long-Covid drug from Berlin is being tested...

You're welcome!

Here's a summary of Dr. Younger's video: He's talking about decentralized clinical trials. A decentralized clinical trial is one you can participate in from home. You see the doctor via telehealth, receive study drugs in the mail, and do any necessary bloodwork at a local lab. This allows...

Hey, its better than the Kidney dysbiosis guy at least. :) (Dr. Igor Markov, who claims ME is caused by kidney dysbiosis and that autovaccines can cure 93% of patients)

Merged thread - This article refers to this talk: __________________ Could a Major Chronic Infection be Underlying ME/CFS? The IACFS/ME Conference Pt. V https://www.healthrising.org/blog/2022/10/18/borrelia-miyamotoi-chronic-fatigue-syndrome/ Health Rising blogpost about a very out-there...

Yes, there's an enormous gulf between the research and care we deserve and what we want. So having different views for ME and illness in general is justified. The paper is about chronic conditions in general, so I've mostly discussed things in that context here.

I disagree somewhat. Helping people better cope with chronic illness is valuable because we can't just invent a cure for all diseases in the foreseeable future. Cancer, heart disease, Alzheimer's, and so on kill millions of people a year despite us having thrown billions at them, and done lots...

PwME and LC get gaslighted regardless of gender, but I believe it's worse for men than women.

I can only see two studies on Clinicaltrials.gov that aren't withddrawn: Pilot Study Into LDN and NAD+ for Treatment of Patients With Post-COVID-19 Syndrome Uncontrolled, unblinded. Yawn. Low-dose Naltrexone for Post-COVID Fatigue Syndrome Double-blinded, 80 in each arm (LDN and placebo)...

A very important point. I believed my ME symptoms were just a strange presentation of my mental conditions for years.

They refer to ME as chronic fatigue once or twice but it's otherwise a pretty solid article.

Here's a piece of research that presents an interesting perspective on chronic illness: "Being Sick Is a Full-Time Job": A Job Analysis of Managing a Chronic Illness https://onlinelibrary.wiley.com/doi/abs/10.1111/1475-6773.13726 Abstract Research Objective The purpose of this study was to...

This is very true. A significant fraction of suicides are impulsive. My experience leads me to the same conclusion. It seems like every time I get a vaccination, I have a short "window" lasting about a week with dramatically reduced symptoms. For example, I can think way faster and get very...

I get the impression her clinic is quite small--I doubt the can even serve 8k people in a reasonable span of time. Yes, please, clinical trials. Nobody should be shelling out that kind of money for a treatment that hasn't been through a single blinded trial.