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Here's a simple table of what they found between Omicron and Delta. It looks like they're comparing people who get acute Delta vs. Omicron, rather than people who get LC from Delta vs. Omicron, so this considers both the differences in what LC symptoms are most common, as well as the overall...

We really need to figure out the issue here. Nobody will take us seriously if they think 30% of healthy people experience PEM.

That's dramatically different from how ME was presented back in the day. ME: "It's just a condition suffered by a bunch of upper-class housewives" Long Covid: "Anyone can get it, regardless of race or social class, but mostly white and upper-class are coming to see us. All the people who can't...

That sounds like fairly typical investing stuff. Often when a small publicly traded company performs poorly, there will be big fights between "activist" shareholders (those who want to play an active role in how the company is run) and company leadership. Edit: Cort Johnson covers this in more...

You bring up a good point I missed. If we give early access more liberally, drug companies may never bother proving their treatments actually work, which will hold back medicine in the long run. I'm personally uncomfortable with Aduhelm and Relyvrio receiving approval in the way they did. Full...

I'm extremely lucky that my doctor gives me longer appointments. It's a small clinic that's rarely busy. We usually book for 30 minutes and we often go over.

I've heard of some long haulers who get taken seriously by some docs. Medicine is learning. It's just at the pace of a glacier, and it needs to be at the speed of a bullet train. GET and gaslighting are harming people. It's even slow slow that I'm like, "Hello! I'm only gonna live so long! I...

Probably BPS because they use CFS/ME. Nothing useful is likely to come out of this. I wish we could get some decent psychosocial research but this won't be it.

This article discusses the issues surrounding allowing patients with horrific prognoses to take unproven, or weakly proven, drugs. It makes me think we need to move from a black-and-white system where a drug is either approved or not to something more complex. For example, one tier for solidly...

As I read this paper, I kept going back and forth. Is this the good or bad type of psychosocial research? I concluded it leans towards bad, because it neglects to say flat-out that long Covid is a real illness. I don't know if this is because the researchers just aren't focusing on that, or...

May not be relevant to ME but that's pretty cool. If this gets developed, I can't wait to see what they discover.

I'm sure psychiatry could make medicine better, if you pointed it in the right directions, and researched with high standards. But as someone else quipped, people like Simon Wessely aren't going to take us there.

This is good. They seem to have improved the clarity of their writing, and the ideas are spot-on. People with ME demand to be treated according to the standard of care, just like everyone else. And doctor can face legal action if they don't bother to provide that.

I always heard Ampligen had a pretty benign safety profile. I think this is a positive development. If it gets approved for LC it will see immediate, widespread off-label use in ME, but that doesn't mean it will work.

Thought this was gonna be an interesting paper, but we've been let down. They make no connection between LC and ME. They neglect the importance of PEM. And why don't they look at unrefreshing sleep? It's a main symptom of ME, and I bet many pwLC have it too.

Solve ME has also covered this: Breaking News: FDA clears Ampligen to start a clinical trial in Long Covid

Merged thread AIM ImmunoTech Announces FDA Clearance of IND Application to Evaluate Ampligen in Phase 2 Clinical Study for the Treatment of Post-COVID Conditions AIM Immunotech will be doing a Phase 2 trial of Ampligen for long Covid fatigue. Here is a press release from the company: AIM...

It will. It definitely will. Just providing every pwME with sympathetic doctors and the supports they need to survive would drastically reduce suicides. Disease-modifying therapies will reduce that even more.

You don't need a doctor's permission to apply for SSDI. A doctor who provides detailed info about your functioning will help you get approved, but this stat tracks applications. However, you may be right that people aren't applying because their doctors don't support them, hence, they don't...

That's very strange, given the wave of LC. Maybe many pwLC aren't even bothering? Also, SSDI applications seem to be correlated with the economy. They drop as unemployment drops--presumably people in marginal health are shifting towards work. Maybe an increase in long haulers is being offset by...