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You're hitting the nail on the head. Science is prioritizing quantity over quality. To answer scientific questions, you need the opposite. One large, rigorous, definitive study has more value than 100 small poorly-controlled ones, in the same way one sharp photo is worth more than 100 blurry...

I read the chapters on sleep. I can't comment much on it because I don't even understand it! It's incomprehensible.

Agreed. Skimmed a few pages before I reached the limit of how much I could roll my eyes :). This paper is such garbage it should be retracted. I should dig into the sleep section to see how laughable it is. We all know it's not wanting to sleep. It's sleeping 10 hours and feeling like you slept...

My favorite quote from the video: He understands that people were willing to suffer for the important research he's doing. His empathy actually brought a tear to me eye. I watch these videos to learn, but also to feel safe. Hearing biomedical doctors talk about ME makes me feel validated, that...

Thank you so much for advocating for us @Tom Kindlon . The article turned out to be solid.

There are very strong correlations between childhood trauma and serious illnesses. For example, the ACE study. The current hypothesis is that ACEs adversely impact brain development, which leads to mental impairments, making it harder for people to take care of their health, increasing the risk...

This paper is almost word salad. I bet an AI could write a better paper about ME. Actually, I attempted this is GPT-J 6B. In fact, it did. The prompt was "myalgic encephalomyelitis" and the computer wrote the rest. I bolded some phrases where the rhetoric is quote biomedical. Edit: This was...

Good because it rebuts the notion that people in developing countries don't have complex chronic diseases. BPS say things like, "If these people were in Africa they'd have to work and get over it" or "If they just took a nice vacation they'd forget about being sick." (Never mind that those seem...

13,500 done with the questionnaire. That's really good. I hope you hit your goals quickly. PwME around the world are watching this study, and hoping it provides answers, or at least lets us ask questions intelligently.

I watched this whole presentation. Nothing in it was totally new, but I liked it. It was a solid overview of PEM and useful for educating doctors and PTs. Dr. Davenport is insightful and empathetic. Repeatedly, he emphasized that PEM and deconditioning have both entirely different causes and...

That's horrible. The "focusing too much on symptoms" bit needs to be fought against hard. I've done so many fun things that made me completely forget about my illness, only to get the exact same PEM afterwards. Heck, I didn't even know I was ill for 3 years, I thought I was just having...

This is concerning, to say the least.

That's actually pretty poor. I perceive that BPS doctors consider their interventions curative or at least powerful. Those figures make the effectiveness seem minimal, even when flawed studies are taken at face value. If GET was actually curative, it would be stupid simple to implement. It could...

My attitude here is summed up as "Trials or go home." This is a poor hypothesis paper with (probably) a hint of marketing.

I hope that's the case. That ME doesn't cause any permanent damage, but that there's some "switch" that's flipped and we just need to flip it back.

Wow, that was pretty good coverage. Dr. Li said that Long Covid is absolutely a real condition: He emphasizes that Covid causes unambiguously physical issues, such as diabetes in children and teens, heart problems and strokes in middle age, and Alzheimer's Disease in older people. While he...

Here's a summary of the genes found to be involved in both Covid-19 and ME/CFS: Angiotensin I-converting enzyme: Produces a hormone that constricts blood vessels, but has shown up in genetic studies of numerous other diseases. Multiple major histocompatibility complex genes: Codes for proteins...