Agree with the article. I thought it was going to be about the dilemma ill people face when using social media is their only lifeline, but their social media use can also be used against them to deny benefits.
Also found this ironic from the Guardian, considering their ME coverage:
I think...
Allergy shots did nothing for me. Tried them for 2 years and gave up, still sneeze near a hazel tree. Fortunately the doctor didn't blame me, call me vexatious or militant, set up a lobby group to misinform the press about me, or have me locked up. Quite a decent chap really.
I wrote my above post before reading to the end of the thread. I shall table this discussion without further rancour.
EDIT: The above statement is not an admission of having been rancorous.
I feel this is a dishonest mischaracterization of my confusion. What you actually wrote was:
This was written after you had complained about David Tuller stooping to make ad hominem attacks, not sticking to the science, insulting, and compounding the insult, and before you stated that you felt...
I'm just asking why you called @dave30th an ass-hat. It seemed inconsistent with everything else you were saying. I suppose the point I was making was that even you don't seem to have been able to resist having a little dig.
Fine sentiments @Bill. However I wonder why you would then choose to undermine your own argument and prove yourself wrong with this:
Not only is this an ad hominem attack (your are implying that @dave30th has behaved like an "ass-hat"), but @dave30th's response proves that such statements do...
They seriously think we can't tell the difference? How patronizing. Why did I suddenly stop being able to tell the difference at the age of 47, having been sporty all my life and greatly enjoyed the sensation of having exerted myself too much up to that point? What happened in my brain when I...
The distinction between "recommending" and "offering key information to allow people to make informed decisions" is extremely fine. Surely if the informed decisions that visitors to AfME's website make is based on the information that AfME chooses to offer / not offer, this is just the same as...
In the case of a charity there is an interest in how donations are being spent, including on salaries. It is interesting to look at what AfME does for people with ME and compare it with what other organisations do who depend largely on volunteers. Knowing how money is spent helps those who wish...
Didn't realise that. I shall let the moderators decide whether it deserves its own thread or not.
Oh, I am a moderator. Well in that case I shall recuse myself from this decision in keeping with the high ethical standards observed at S4ME, and abide by the decision of my learned colleagues.
I...
It's great that you welcome feedback from S4ME forum users. I noticed on AfME's website that AfME have 3 forums of their own, where I expect they welcome feedback from their members as well. I'm therefore surprised that AfME haven't already revised their information about CBT and GET, especially...
@Action for M.E. , Clare,
I have had mild (ie life-changing but not house- or bedbound) ME for 4 years. Is it @Action for M.E. 's position that I should find myself an appropriately trained professional and give GET a try?
http://www.bbc.co.uk/news/resources/idt-sh/caroline_wyatt_multiple_sclerosis
ME and Rituximab get a very brief mention each. An interesting account of HSCT ("Stem Cell Reboot").
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