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Details below. Basically, they aim to recruit a lot of people with a positive diagnosis for SARS-COV2 and follow them for 18 months, with ME/CFS as the primary outcome. (I think that's quite a strong connection with ME/CFS.) Innovative Support for Patients With SARS-COV2 Infections (COVID-19)...

Post copied from Attitudes of incoming US politicians to ME/CFS and post-Covid 19 illness Details below. Basically, they aim to recruit a lot of people with a positive diagnosis for SARS-COV2 and follow them for 18 months, with ME/CFS as the primary outcome. (I think that's quite a strong...

No. These are differences in methylation of DNA - think of methylation as a tag that alters the activity of genes near the tagged DNA. So as @Jonathan Edwards says, it's about gene control (through methylation), not differences in DNA sequences that GWAS detect. Oh, that is disappointing. Though...

Like all Warren Tate studies, this seems to be done meticulously well, but on a very small sample. The finding that there was a 59% overlap of the specific genes identified in this study with other studies using (inferior) array-based technology, together with the clustering around types of...

Plain talking! note that this new analysis has not yet been peer reviewed, but I am delighted to see healthy scrutiny of any ME/CFS research. It is all too rare. Note that the recent genetics review from Dibble, McGrath and Ponting also raised concerns about the Pérez study.

The makers of Ampligen see treating long Covid as a huge potential market opportunity for them, and have produced an exploratory (so not reliable) analysis of existing data that conveniently supports this. That said, the idea that people who have been ill for less time are more likely to...

"BACME believes that patients should have access to the best available clinically effective treatments, therapy and support with rehabilitation to relieve, reduce and manage symptoms where possible." The "clinically effective" bit might be a problem for them, whatever the rest of the language...

:) A distraction A long time ago there was another flaky personality study, which I tried to send up. You don't need to know the details of the study, but it was this one by Nater. Errant scientist called to see the Headmaster: "Nater, come here! I've just read your paper and it's complete...

What I like most about this #mecfs paper is researchers doing a pilot study in order to improve the quality of their final studies. Will be excited to see how this work pans out in the pre/post exercise studies to come. Note that the cytokine study only had a sample size of 19...

Some comments Strange study design Leaving aside the issue of some table data not matching the figures, the study has a weird design. The group has spent the last decade focusing on the difference in ME/CFS patients between maximum exercise tests on day two compared with day one. Now, this...

I suspect we are in a better position than in most ME/CFS studies Yes, it's important to go into this with an open mind. that doesn't exclude ME/CFS as one possibility for some patients (as stressed in my blog - we don't know anything for sure). All researchers I saw expressing an opinion...

“The nanoneedle’s inability to keep up with the demand meant that its full potential wasn’t nearly being reached. A dramatic upgrade was needed. That has happened. The nanoneedle has been redesigned and sent to a manufacturer in China and one in the US to produce. Where it could test one sample...

I would have thought there were two big advantages to the current situation. The first is that it is relatively easy to set up prospective studies of long covid. Assuming for now that some of them will prove to have ME/CFS, that means prospective studies of ME/CFS too. Along with genetic...

In a way it is - but useful still as a lot of people were suffering post coronavirus and needed help. When the medical establishment was assuming they were fine and often telling people it was psychosomatic. Long covid patients have focused minds on the problem: WHO, CDC and NIH amongst others...

I am not into competitive suffering either but I wanted to express empathy for others with chronic illness. No one yet knows what long covid is. People are dying of coronavirus and those with long covid are concerned this might kill them too. It's very early days so it's like the early days of...

New blog Understanding long covid: a shortcut to solving ME/CFS? Simon McGrath Understanding long covid: a shortcut to solving ME/CFS? September 17, 2020 Simon McGrath Comments 0 Comment Large numbers of people, around one in 10, don’t make a normal recovery from coronavirus but continue...

A great Stat news article by David Tuller @dave30th Seeking the causes of post-Covid symptoms, researchers dust off data on college students with mononucleosis From 2014 to 2018, DePaul University psychologist Leonard Jason and colleagues collected personal information and blood samples from...

I'm still slightly in disbelief that the head of WHO has said it will reach out to people with ME. Especially as my tweet didn't tag either him or the WHO. Ha! Indeed. It needs to go to those with a mandate to represent the community. Assuming WHO do get in touch with me, I think my only job...

Well, if the WHO said ME/CFS should be treated as a major health priority for the world, that would be a good start. Highlighting it so that ME/CFS is considered by all researchers studying long Covid would be a good step too. I am still really shocked by the response so haven't given it that...

Big thanks to @Andy for posting this. I posted similar on Twitter and got very lucky It's amazing and, hopefully, this will lead to serious action by the WHO. Moderator note: This post has been copied and following posts discussing the WHO and ME will be moved to this new thread: The World...