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id meant that as May 2018, but see it’s unclear. Now May 8 Thanks. I’d originally had “Massive Siri had Knesset!) $86 million shop full”. Then I took out the figure because it’s too precise. The hundred million dollars is just an estimate. Basically, current funding is an order of magnitude less...

One for ME Awareness week There’s a yawning gap in ME/CFS research funding. Take action. When I got ME more than 20 years ago, I thought that science would soon provide the answers to my illness. Instead, I saw little good research going on, and there’s been a spectacular lack of progress...

It’s a Q&A. Chris is suggesting there is currently rather more to it than that.

Thanks for the explanation, @Woolie I write a blog about cognitive tests and fatigue a few years ago: http://phoenixrising.me/archives/16688 I can’t remember all the details of the research, but I think the Stroop test is one of those that has shown differences between patients and controls...

Very kind :). I did write the piece in part to give people hope, but mainly because I feel very hopeful myself about the collaboratives. I’ve long been frustrated by the general lack of high-quality biomedical research and I really do think that the collaboratives are going to change that in a...

A new research landscape emerges in America Things are changing in the US for ME/CFS research as four new collaboratives set up and get to work. In September last year, the National Institutes of Health (NIH) announced $35 million of funding to establish three new ME/CFS research...

I’m not sure I actually count as a “proper expert”, but here goes: That video was pretty detailed. But the principle of how AMPK operates is pretty simple. Its senses the energy state of the cell, and when the cell starts to run low on fuel AMPK responds by boosting energy production, and...

Goodbye, Bob. Will miss you so much. I’m thinking of you, and your family.

Authors: Jose G Montoya1, Jill N Anderson1, Danya L Adolphs2, Lucinda Bateman3, Nancy Klimas4, Susan M Levine5, Donn W Garvert1, Jon D Kaiser this was a double blind multi-centre trial (n=67 + 68) of a mitochondrial-function boosting treatment, using the Checklist individual Strength...

I’m assuming that those last two are two different versions of the same basic questionnaire? That would seem not so different from the change that PACE made (which does undermine their approach). I don’t know how easy it is to get a Parliamentary enquiry set up, but I assume there is a certain...

My views of PACE's methodological flaws are on record, but there are a couple of issues around these particular arguments: PACE have already argued that they primary outcomes are still self-reported fatigue and function; they changes from categorical to continuous reporting*, but that's not...

Thanks. And it’s really good to hear you have those links coming in. I fear it might also be The Bubble in action :(.

Thank you all!