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  1. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    An article in the women's magazine WMN with pediatricians (resident doctors) Réka Garai and Vivien Herczeg. I occasionally post here conference abstracts from Hungarian pediatricians on long covid, these conference abstracts are from these doctors (my very last post just above this one for...
  2. Wyva

    2024 Stanford MECFS meeting

    And it is "amazing".
  3. Wyva

    Resting-state neural dynamics changes in older adults with post-COVID syndrome and the modulatory effect of cognitive training and sex, 2024, Nagy et

    The participants of the study were older but they were not hospitalized during acute covid. They had a mild or moderate infection.
  4. Wyva

    Resting-state neural dynamics changes in older adults with post-COVID syndrome and the modulatory effect of cognitive training and sex, 2024, Nagy et

    Boglárka Nagy Andrea B. Protzner, Balázs Czigler & Zsófia Anna Gaál Abstract Post-COVID syndrome manifests with numerous neurological and cognitive symptoms, the precise origins of which are still not fully understood. As females and older adults are more susceptible to developing this...
  5. Wyva

    News from Southeastern Europe

    Saw this on Facebook from the Croatian ME/CFS/Fibromyalgia/Dysautonomia patient org. Facebook translation (I guess ME/SKU is ME/CFS?): "Dear all, We invite you to the meeting and congress of Slovenian, Serbian and Croatian societies for ME/SKU, which will be held on the 14th. September in...
  6. Wyva

    Unique genetic and risk-factor profiles in clusters of major depressive disorder-related multimorbidity trajectories, 2024, Gezsi et al

    I'm mostly sharing this because there have been a couple of articles about this study here in Hungary in the media in the last couple of days. And there was one article on a health website that said that the health conditions with the strongest association with depression are CFS, fibro, IBS...
  7. Wyva

    Unique genetic and risk-factor profiles in clusters of major depressive disorder-related multimorbidity trajectories, 2024, Gezsi et al

    Abstract The heterogeneity and complexity of symptom presentation, comorbidities and genetic factors pose challenges to the identification of biological mechanisms underlying complex diseases. Current approaches used to identify biological subtypes of major depressive disorder (MDD) mainly...
  8. Wyva

    Long COVID diagnostic with differentiation from chronic lyme disease using machine learning and cytokine hubs, 2024, Patterson et al

    Bruce K. Patterson, Jose Guevara-Coto, Javier Mora, Edgar B. Francisco, Ram Yogendra, Rodrigo A. Mora-Rodríguez, Christopher Beaty, Gwyneth Lemaster, Gary Kaplan DO, Amiram Katz & Joseph A. Bellanti Abstract The absence of a long COVID (LC) or post-acute sequelae of COVID-19 (PASC)...
  9. Wyva

    Improving Quality in Adult Long Covid Services: Findings from the LOCOMOTION Quality Improvement Collaborative, 2024, Darbyshire, Greenhalgh+

    It was an unreasonable and uncalled for reaction to a quite polite request asking for help. Not surprising though, considering her history of mass blocking (often completely unaware) people on Twitter.
  10. Wyva

    Miguel Bautista’s CFS Recovery ‘recovery jumpstart’

    Bautista apparently sent out a press release about his groundbreaking treatment. CFS Recovery Leads the Way with Brain Retraining for Chronic Post-Viral Syndromes CFS Recovery has introduced a groundbreaking nervous system recalibration program designed to address persistent post-viral...
  11. Wyva

    Management of patients with neurological diseases considering post-pandemic coronavirus disease 2019 (COVID-19) related risks and dangers (...), 2024,

    Updated consensus statement from the European Academy of Neurology. No mention of ME/CFS or PEM. These are their statements on long covid, sorry about the formatting: After recovery from COVID-19, some people may develop fatigue, muscle aches, problems with memory and attention/concentration...
  12. Wyva

    Management of patients with neurological diseases considering post-pandemic coronavirus disease 2019 (COVID-19) related risks and dangers (...), 2024,

    Management of patients with neurological diseases considering post-pandemic coronavirus disease 2019 (COVID-19) related risks and dangers — An updated European Academy of Neurology consensus statement Saša R. Filipović, Serefnur Özturk, Daniel Bereczki, Benedetta Bodini, Francesco Cavallieri...
  13. Wyva

    Severe ME Understanding & Remembrance Day, 8th of August 2024

    Protest in Berlin: People who are affected by ME/CFS during a lie-in demonstration No touch, no light, no sounds - those afflicted with ME/CFS find their daily life severely restricted. This is the focus of a protest by those affected. - People who are affected by ME/CFS during a lie-in...
  14. Wyva

    Maeve Boothby O'Neill - articles about her life, death and inquest

    The Observer letters: ME: we need more funding and more research Two responses to Alastair Miller's awful opinion piece a couple of days ago. Alastair Miller claims there have been “years of well-funded research” into ME (“Maeve Boothby-O’Neill’s harrowing case highlights clashing NHS...
  15. Wyva

    Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?

    Personal anecdote, not about questionnaires but similar about gaming etc these: I was abused as a kid and there was this occasion when I was seen by a psychologist. I was quite little, definitely 10 or younger at primary school. I remember that I had to do a couple of different tasks that were...
  16. Wyva

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    iNews: I had ME and almost died – my doctors gaslit me There is a lot about Maeve in this article, clearly the current inquest into her death was the reason Lucy Rowett's story inspired an article too but Maeve's thread can get very busy, so I thought it was a better idea to post this article...
  17. Wyva

    Maeve Boothby O'Neill - articles about her life, death and inquest

    The Guardian: Maeve Boothby-O’Neill’s harrowing case highlights clashing NHS narratives on ME by Alastair Miller "Given this, it was perhaps sadly inevitable that some people would question whether ME/CFS was a “real disease” or was “all in the mind”. Indeed, the original description of ME...
  18. Wyva

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    This reminds me of the time when I sent a letter to the Hungarian Academy of Sciences after Professor Janszky, a neurologist, made same pretty horrible unsupported claims about ME/CFS patients at the long covid symposium of the academy. He was just regurgitating stuff Sharpe and the BPS crowd...
  19. Wyva

    issue of 'chronic fatigue' without the syndrome being used by media and others and probably pwme

    Just adding my recent anecdote about this. Background info: there is basically no original local coverage of ME/CFS or LC here. Almost all the articles you can read about these diseases here in the media are translated from foreign articles (from English or German-language media). Usually it is...
  20. Wyva

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome After SARS-CoV-2 Infection, 2024, Unger et al

    Another article in US News: COVID-19 Won't Raise Odds for Chronic Fatigue Syndrome: Study The news outlets are picking up the press release, more of these articles may come.
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