Search results

Recently I sent a letter to the Department of Quality Improvement and Methodology (a department under the Secretary of Health) about the ME/CFS situation in Hungary. I don't really have too much time right now but this is the answer I have just received (Google Translate):

Another article from Germany: Post-COVID vaccination syndrome: What do we know? Like long COVID, post-COVID vaccination syndrome is characterized by a wide variety of symptoms and clinical pictures including chronic fatigue syndrome (CFS/ME), migraines, muscle pain or cardiovascular diseases...

BioNTech faces first German lawsuit over alleged COVID vaccine side effects Rogert & Ulbrich says it has filed about 250 cases for clients seeking damages for alleged side-effects of COVID-19 vaccines. Another law firm, Caesar-Preller, says it is representing 100 cases, with both firms saying...

An interview with Dr. Vesna Ikonić Marinković, a pediatrician from Serbia, who has recently started suffering from ME/CFS, probably after a covid infection. Google translated version: CAN'T SLEEP, DO YOU FEEL CONSTANTLY TIRED? Doctor Vesna reveals that it is a serious DISEASE

I can't really add much, as I'm not medically trained but I'm interested in anything that may explain my fluctuating water weight issues. I'm really really tiny in every way but managed to gain 3 kg in 4 days last week for example, all water. That's huge. And that's on top of my already bad...

There is a doctor here, owner of a private clinic for HBOT, who has been popping up in the media recently, promoting HBOT as a treatment for long covid. (Interestingly, she is a psychiatrist originally.) To prove her point, she says there have been double-blinded placebo controlled studies that...

They also seem to have a "similarity score", meaning similarity of people participating. A lot of this seems to be based on Reddit posts, basically what people reported there about the different treatments they tried.

One of the very few articles from Hungary where a doctor talks about long covid (so the article is not a translation of some foreign article about long covid, which is much more common, but original stuff - the latter is really rare). The doctor in the article is Gábor Markó, a neurologist and...

My short-term memory seems to be quite badly affected on top of the constant brain fog and concentration problems. My long-term memory is fine. I mentioned several examples in other threads on this forum about how I quite often randomly forget things I have just done or started doing and I keep...

Full title: Cognitive functioning in postural orthostatic tachycardia syndrome among different body positions: a prospective pilot study (POTSKog study) Abstract Purpose Approximately 96% of patients with postural orthostatic tachycardia syndrome (PoTS) report cognitive complaints. We...

Basically, this was one of the largest internet pirate websites you could find.

A very popular torrent website, rarbg has just shut down. This is what you can read on the website now about the reasons: Hello guys, We would like to inform you that we have decided to shut down our site. The past 2 years have been very difficult for us - some of the people in our team died...

Abstract BACKGROUND The literature is mixed about the occurrence of alcohol intolerance among patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Surveys that asked respondents with ME/CFS whether they experienced alcohol intolerance within a recent time frame might...

Medical Xpress: Study starts to unravel stigma around chronic fatigue syndrome "It revealed the proportion with mental health problems was smaller than might have been expected: there was no evidence of mental health problems in three quarters of the people developing the unexplained...

"About the Patient-Generated Hypotheses Journal Welcome to the Patient-Led Research Collaborative’s first issue of the Patient-Generated Hypotheses Journal. This issue is a compilation of six hypotheses plus poll results. People with Long COVID and associated conditions and caregivers of...

Does anyone have access? The Times: Thousands of ME patients ‘failed by shockingly poor NHS care’ National treatment guidelines published two years ago are still not widely implemented, says charity

Here's the webinar on YouTube:

If anyone is interested, my blood test result from this week was negative for the anti-VCA IgM and indeed significantly lower than last year, meaning I got a very normal ("had EBV at some point in the past") result. I guess this value is something that probably fluctuates over time, at least for...

This is just an abstract from a conference (31st Meeting of the European Society of Paediatric Clinical Research) but I'm putting it here in case anyone is interested. From Semmelweis University.

Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a multifaceted condition that affects most body systems. There is currently no known diagnostic biomarker; instead, diagnosis is dependent on application of symptom-based case criteria following exclusion of any...