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Once I dated a guy who, when being offered vegetarian options at a restaurant etc, tended to say: I am a man, I eat meat. And there was this other time when I was drinking a glass of beer and the guy I was talking to looked at me with horror, said that women should never drink beer, took my...

I don't think you are gatekeeping and I think this is indeed a common thing even with other diseases that tend to cause fatigue. I also have a significant number of people in my ME/CFS group with known autoimmune etc diseases who seem to be there mostly because of the chronic fatigue thing...

Are the Fridays for Future protests started by Greta Thunberg still happening? When kids skip school on Friday. I'm wondering if that may contribute to this.

I was a huge metal fan in my younger days, attended tons of concerts and festivals. I didn't listen to the really melodic bands like Iron Maiden etc but to bands from Nordic countries with a more abrasive sound than that. You can imagine how much I can listen to that now. I mean I can but I...

Yeah, I meant something like "breaking up into smaller pieces, not doing everything all at once" by that but I can see how it can also be interpreted in other ways, especially if someone is not familiar with the concept of pacing. I haven't thought of that, to be honest, but I'll try to avoid...

I was asked by the editor-in-chief of the health website InforMed to write an up-to-date article on ME/CFS. InforMed is a smaller health news website written by doctors for patients (but it definitely has some traffic because the "ask a doctor" section seems pretty busy with questions). It is...

This was posted today on the FB page of the Finnish ME/CFS association: Facebook translation:

No, this is literally there in the plain English summary text.

ChatGPT is pushing generative AI forward, with powerful potential in health care settings Asked to pull up a few studies on chronic fatigue syndrome from the past six months, ChatGPT responded with confidence, listing five scientific studies published in 2022 and 2023, complete with author...

I'm happy he was invited and the BPS people had to listen to this in their little bubble.

I remember this post-covid counselling program in pharmacies in Serbia. Here is a short article about it in the News from Southeastern Europe thread.

A $1 million grant from the Steven & Alexandra Cohen Foundation will launch a UC San Diego-led national effort to more deeply study tissue samples from patients with conditions ranging from long COVID-19 and relapsed Lyme disease to chronic fatigue syndrome (...) Dubbed the “Tissue Analysis...

By the way, someone in my group tried ChatGPT and asked some questions about ME/CFS in Hungarian. Not just in general but also about how you can get good info about ME/CFS. And ChatGPT said my website is the Hungarian ME/CFS website, the one recommended for information about the disease in...

Long article about treating long covid with LDN in Rolling Stone: Can an Addiction Drug Treat Long Covid? Digging into the research, Korbutov learned that while naltrexone only has approval from the U.S. Food and Drug Administration (FDA) for treating people recovering from addiction to heroin...

Post copied from the Long Covid in the media thread Long article about treating long covid with LDN in Rolling Stone: Can an Addiction Drug Treat Long Covid? Digging into the research, Korbutov learned that while naltrexone only has approval from the U.S. Food and Drug Administration (FDA) for...

The situation with the Austrian petition is a bit confusing to me (you can find comments about it earlier in this thread but it also had its own thread here). Because I remember how the government reacted to it was disappointing. But now CFS Hilfe, the Austrian patient org posted this on...

I'm talking about the subjective outcome measure + no control group combo, which we would never accept from a BPS study as convincing or promising. It should be the same standards for everyone. We have actimetry, a 6-minute walk test, it doesn't need to be self-reported improvement. Maybe these...

Self-reported symptoms, no control group.

Full title: Impact of the COVID-19 pandemic on clinical autonomic practice in Europe A survey of the European Academy of Neurology (EAN) and the European Federation of Autonomic Societies (EFAS) Abstract Objective To investigate the impact of the coronavirus-disease-2019 (COVID-19) pandemic...

Do they only expect it to work in the early stage?