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  1. Wyva

    Circulating anti-nuclear autoantibodies in COVID-19 survivors predict long-COVID symptoms, 2022, Mukherjee et al

    Abstract Background Autoimmunity has been reported in patients with severe COVID-19. We investigated whether antinuclear/extractable-nuclear antibodies (ANAs) were present up to a year after infection, and if they were associated with the development of clinically relevant Post-Acute Sequalae...
  2. Wyva

    Fecal transplants in ME/CFS

    There is someone in my group who tried it but she said for her it was a big disappointment, although she had high hopes.
  3. Wyva

    USA: 2022 Sep 19: Long COVID, ME/CFS Patients Protest in Front of White House

    The BMJ: Long covid: protesters outside the White House demand better care Protesters took to the pavement outside the White House on 19 September to demand a better deal for people affected by long covid, complaining that the Biden administration’s plans fell short on action and funding...
  4. Wyva

    Differences in outcomes after total hip arthroplasty for osteoarthritis between pts with and without CS syndromes other than FM, 2022, Ohashi et al

    From what I can see, only one person with CFS was included in this study, so feel free to move this to a different subforum if that's better suited.
  5. Wyva

    Differences in outcomes after total hip arthroplasty for osteoarthritis between pts with and without CS syndromes other than FM, 2022, Ohashi et al

    Full title: Differences in outcomes after total hip arthroplasty for osteoarthritis between patients with and without central sensitivity syndromes other than fibromyalgia Abstract We investigated the differences in outcomes after total hip arthroplasty (THA) for hip osteoarthritis (HOA)...
  6. Wyva

    Associations of Depression, Anxiety, Worry, Perceived Stress, and Loneliness Prior to Infection With Risk of Post–COVID-19 Conditions, 2022, Wang et a

    Key Points Question Is psychological distress before SARS-CoV-2 infection associated with risk of COVID-19–related symptoms lasting 4 weeks or longer, known as post–COVID-19 conditions? Findings This cohort study found that among participants who did not report SARS-CoV-2 infection at...
  7. Wyva

    JK Rowling new book — chronic illness references

    So I have no idea what is going on here, because those screenshots with the tweets were pretty confusing to me. But I did spot CF, fibromyalgia and ME here and there in that text. Edit: I just realized more info was added to the above post a bit later, so mine is a bit redundant now. :)
  8. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    An abstract published in Ideggyógyászati Szemle Proceedings (Clinical Neuroscience Proceedings) by neurologists at the Hungarian National Institute of Mental Health, Neurology and Neurosurgery. This is the Google translated version: Post-Covid syndrome autonomic nervous system abnormalities...
  9. Wyva

    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    This is also how it was explained in my English grammar books (they teach British English here). Now I actually looked this up in a book I have titled Cambridge Grammar of English (from 2011) because it has a chapter about the grammatical differences between the two (and it is 10 pages long)...
  10. Wyva

    Post-COVID-19 Syndrome is Rarely Associated with Damage of the Nervous System: ..., 2022, Fleischer et al

    I had to reread the last sentence 2 or 3 times until my ME brain realized that it is not actually "Patients pretending..." :oops:
  11. Wyva

    The chronification of post-COVID condition associated with neurocognitive symptoms, functional impairment and (...), 2022, Nehme et al

    "Risk factors for the chronification of symptoms may include having several symptoms at time of testing and the presence of cognitive symptoms evidenced by a difficulty concentrating. A recent study described the longitudinal evolution of symptoms over 12 months and suggested neurologic symptoms...
  12. Wyva

    The chronification of post-COVID condition associated with neurocognitive symptoms, functional impairment and (...), 2022, Nehme et al

    Full title: The chronification of post-COVID condition associated with neurocognitive symptoms, functional impairment and increased healthcare utilization Abstract Post-COVID condition is prevalent in 10–35% of cases in outpatient settings, however a stratification of the duration and...
  13. Wyva

    The Significance of Pain Drawing as a Screening Tool for Cervicogenic Headache and Associated Symptoms in Chronic Fatigue, 2022, Bernhoff et al

    Purpose: Patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) present with a broad spectrum of symptoms, including headache. A simple, yet powerful tool – the pain drawing identifies essential aspects such as pain distribution. The aim with this study was to 1) evaluate the...
  14. Wyva

    Muscle fatigability and post-acute COVID-19 syndrome: A case study, 2022, Fanous et al

    "Some studies have raised the possibility that COVID-19 may be causing chronic fatigue syndrome (CFS) in post-acute COVID-19 and thus leading to the observed fatigue complications (Deumer et al., 2021; Murga et al., 2021), but in this case, there was no reduction in actual muscle torque nor a...
  15. Wyva

    Muscle fatigability and post-acute COVID-19 syndrome: A case study, 2022, Fanous et al

    Abstract The acute phase of COVID-19 has been well studied, however with increasing post-acute COVID-19 syndrome, much is unknown about its long-term effects. A common symptom in both the acute and post-acute phases has been fatigue, assessed predominantly qualitatively. Here we present a...
  16. Wyva

    Low-Dose Hydrocortisone for Treatment of Chronic Fatigue Syndrome - A Randomized Controlled Trial, 1998, McKenzie et al

    Correction: I just realized I mixed up my cortisol result with my ACTH result. My cortisol level is great, it is actually right in the middle of perfect. So at least in my EBV triggered case, we can rule out any cortisol involvement. It is not even a little bit low.
  17. Wyva

    Low-Dose Hydrocortisone for Treatment of Chronic Fatigue Syndrome - A Randomized Controlled Trial, 1998, McKenzie et al

    If anyone is interested, my cortisol turned out to be pretty low, but still within normal range. The CDC and Hutan were right. :thumbsup:
  18. Wyva

    Low-Dose Hydrocortisone for Treatment of Chronic Fatigue Syndrome - A Randomized Controlled Trial, 1998, McKenzie et al

    Thanks for this @Andy and @Hutan . My cortisol level (and some other endocrine values) will be checked on Monday at Semmelweis University. It was my GP's idea but also the endocrinologist at the University offered me to do these tests, admittedly because that's the only thing he can do about...
  19. Wyva

    News from Austria and Switzerland

    Found an interview in English with Michael Stingl, Austrian neurologist who specializes in ME/CFS. Long-Covid treatment: instead of inaction – use existing medication! As a doctor, what do you need to better treat patients with ME/CFS and Long Covid? The big problem with ME/CFS is that we...
  20. Wyva

    Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in Australian primary care patients: only part of the story?, 2022, Orji et

    Abstract Background ME/CFS is a disorder characterized by recurrent fatigue and intolerance to exertion which manifests as profound post-exertional malaise. Prevalence studies internationally have reported highly variable results due to the 20 + diagnostic criteria. For Australia, the prevalence...
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