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  1. Wyva

    Help needed: Send messages to Hungarian pwME for my ME Awareness Day project

    Thank you for all the wonderful messages so far, they are great and very useful. For those who still may be planning to write a similar message: I can still accept messages today and tomorrow, but starting from Monday I won't accept more. So if they would like to write one, today or tomorrow is...
  2. Wyva

    "Treating Long-COVID: Part 1" by Doctor B (the PT) i.e. a physical therapist

    Yes, of course. I'm saying that when she said CFS patients without PEM can benefit from HIIT, even that is not correct, since the study wasn't about HIIT but about moderate level continuous exercise vs moderate level interval training. (This is because they had to match the workload of the two.)...
  3. Wyva

    "Treating Long-COVID: Part 1" by Doctor B (the PT) i.e. a physical therapist

    I've found the paper about HIIT and CFS she was referring to. We have a thread on it: Fatigue Exacerbation by Interval or Continuous Exercise in Chronic Fatigue Syndrome (2016) Sandler, C; Llloyd, A; Barry, B From the paper: This doesn't actually sound like HIIT, it is not intense enough...
  4. Wyva

    "Treating Long-COVID: Part 1" by Doctor B (the PT) i.e. a physical therapist

    Ehh, what is she talking about? HIIT is brutal, that's the point. I'm not even sure it is a good idea for beginners as it is a perfect fitness regimen to make someone lose motivation quickly because of how rigorous and demanding it is. It is for fitness freaks like I was and this was one of the...
  5. Wyva

    News from Germany

    There was a presentation by a German doctor called Andreas Stengel from the University of Tübingen at the international long covid conference of the Hungarian Academy of Sciences. He is very definitely a BPS proponent. I wrote a very short summary and you can also watch the video there if...
  6. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    The second part was less interesting to me. However, we still weren't left without some first class BPS bullshit but this time it came from a German guy called Andreas Stengel from the University of Tübingen. Just in short: among the predictors of post-covid fatigue he mentioned previous...
  7. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    So today is the international long covid conference of the Academy (posted at the top of this page) and I'm watching it online. So far it is much better than last time but not perfect. The first section was the introduction basically, a brief summary of long covid in general. It wasn't so...
  8. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    The Academy is launching a post-Covid national research program Previously I wrote about the two rounds of post-covid studies that already won funding from the Academy (the topic was post-covid everything, including economic, social impact etc of the pandemic, so not just long covid but most...
  9. Wyva

    What does it mean when an ME/CFS patient says they "got long covid" after catching SARS‑CoV‑2 (COVID)?

    Not exactly what you asked but I think it is still interesting and related: There was someone in my own group who was diagnosed with ME/CFS after a parvovirus infection. She said she went through hell but recovered after three years. Then she caught covid and long covid and although the...
  10. Wyva

    Preprint: Does pre-infection stress increase the risk of long COVID? Longitudinal associations between adversity worries (...), 2022, Paul, Fancourt

    "Further, research into other post-viral syndromes such as myologic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has shown a heightened risk for individuals who have experienced stressful life events,29 and there is substantial overlap in the symptoms of long COVID and ME/CFS.30,31...
  11. Wyva

    Preprint: Does pre-infection stress increase the risk of long COVID? Longitudinal associations between adversity worries (...), 2022, Paul, Fancourt

    Full title: Does pre-infection stress increase the risk of long COVID? Longitudinal associations between adversity worries and experiences in the month prior to COVID-19 infection and the development of long COVID and specific long COVID symptoms Abstract Background Long COVID is increasingly...
  12. Wyva

    Help needed: Send messages to Hungarian pwME for my ME Awareness Day project

    Thanks Andy. Unfortunately I don't have Twitter (it is not so popular here) and Twitter seems to restrict access for unregistered visitors (usually I can only view a few things). Also, it's better not to have too many messages for both my and the readers' sake and I think the ones here will be...
  13. Wyva

    Help needed: Send messages to Hungarian pwME for my ME Awareness Day project

    Just a quick reminder that this project is still accepting messages this week. :)
  14. Wyva

    Help needed: Send messages to Hungarian pwME for my ME Awareness Day project

    I don't really have a definite time scale yet. I can translate these bit by bit, gradually, so if someone shares their message a bit later, it is fine too, it won't be too much extra work probably. I think I'll stop accepting new messages for this project at some point but I'm sure it will be...
  15. Wyva

    Long COVID Citizen Scientists: Developing a Needs-Based Research Agenda by Persons Affected by Long COVID, 2022, Ziegler et al

    Abstract Background Long-term health consequences following acute SARS-CoV-2 infection, referred to as post-COVID-19 condition or Long COVID, are increasing, with population-based prevalence estimates for adults at around 20%. Persons affected by Long COVID report various health problems, yet...
  16. Wyva

    Help needed: Send messages to Hungarian pwME for my ME Awareness Day project

    Thank you, these are great! :) I'm still looking for more, so bumping the thread up. :)
  17. Wyva

    Medical educators' experiences on medically unexplained symptoms and intercultural communication—an expert focus group study, 2022, Sallay et al

    Thanks. Yes, I've actually seen it, just didn't have the energy to read through it yet. :) Yes, it is true, there isn't any kind of guidance or protocol and that is one of my arguments when I send letters about adapting the NICE guideline to people in key positions. The task here is not to...
  18. Wyva

    Help needed: Send messages to Hungarian pwME for my ME Awareness Day project

    There is a "too long, didn't read" version at the end. So my problem is the same as last year: I wanted to write an article for ME Awareness Day based on how pwME in Hungary are affected by the disease, how healthcare, social services etc treat them, how this affects their family and social...
  19. Wyva

    Circadian rhythm disruption in [ME/CFS]: Implications for the post-acute sequelae of COVID-19, 2022, McCarthy

    This is my nightmare. I'm in year 6 and I've had hypersomnia since the beginning. I sleep very well all night, then wake up in the morning, have breakfast, drink my coffee, read some news, then often go back to bed to nap more because of the literal "unrefreshing" sleep (this usually means...
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