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I don't know if anyone here noticed but this part is actually missing from the now published version.

Eventually they will say that symptomatic covid infection doesn't exist, it is just psychosomatic, caused by pandemic-related distress in people who are psychologically prone to it. That would be awesome, finally it would be obvious to the whole world how BPS ideology is more of a religion than...

(Don't learn geography from that map though, they mixed up the Czech Republic with Hungary. Otherwise, it is of course interesting.)

Yes, I've had this thought for a while now that even when an unshakeably good biomarker is found, they will just say: "But they do that with their mind!" :yuck:

This post has been copied and following posts moved from this thread: Physios for ME

Key Points Question What is the association of a COVID-19 diagnosis and mobility and physical function among community-living middle-aged and older Canadians during the initial pandemic lockdown in 2020? Findings This cohort study of 24 114 participants found that community-living...

I also believe that there is a cultural element for this very reason. I know that in Hungary most people never heard of EBV or mononucleosis unless they actually had it. I know I had no idea of their existence, had a hard time explaining even mono to quite a lot of people and also never met...

I honestly hope they won't ruin any kid's life with some surgery. Or even worse, series of surgeries. :(

I've read this article too and it also recommend treatments such as GET, yoga, hypnotherapy, improving sleep habits, mindfulness etc. I wasn't impressed at all either, so good job giving feedback, @boolybooly

I also actually have it, although for me it is air hunger, a feeling of not enough air coming into my lungs even though I breathe normally. Of course it can get worse with exertion but that is not the source for me and if I have it then I have it even if I just sit and do nothing (once I felt I...

Oh no. Raelan Agle, Pamela Rose etc are all these ME/CFS coaches who have even recommended the Lightning Process or NLP. I actually have a lot of issues with them and their YouTube videos in my own ME/CFS group because people keep sharing their material. They think all those recovered patients...

Additional info: this is not just an Australian thing but an update to the original guideline endorsed by the organization World Physiotherapy. Originally, PEM wasn't mentioned, so this is a new addition. The guideline has been translated to many different languages...

As you can see, this is not a new article but I thought it was worth sharing. Written by a family physician. Not really about ME/CFS but this general attitude would be really beneficial for us too of course. “I don’t know.” It’s an answer patients hate to hear. It is also an answer we doctors...

I'm posting this after getting a Google Scholar alert because the entire paper was translated to Hungarian. This paper was mostly written by Australians involved in physiotherapy. PEM is mentioned: ME/CFS is not mentioned (I haven't read the whole paper though).

Abstract This document provides an update to the recommendations for physiotherapy management for adults with coronavirus disease 2019 (COVID-19) in the acute hospital setting. It includes: physiotherapy workforce planning and preparation; a screening tool for determining requirement for...

Some of you may remember that about a month ago I wrote a letter to a Hungarian Member of the European Parliament. @Michiel Tack drew my attention to him after he spoke supportively about ME/CFS patients when Evelien Van Den Brink gave a speech in front of the petitions committee of the EP...

Are there any sources about this available online? These are quite prominent symptoms for me and I'd love to read more, especially about the water balance issue that badly affects me but only seems to affect a very small number of patients otherwise (and thus I struggle to find decent info about...

There is this study here that is funded by the Hungarian National Academy of Sciences (google translate): If someone is interested they can check out some of the other long covid studies funded by the Academy in this post: News from the Visegrád Countries - Czech Republic, Poland, Slovakia and...

I can relate so much. This is exactly my problem too and I've been thinking about this even more lately, now that I'm actually worse than when I started writing the articles/letters. I'm literally full of ideas that I feel should be done and could be done quite easily without this disease but...