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If anyone's interested, here is how the idea of the concert came up and Chris Martin got involved, according to Hal: Walker’s three close friends from college at Northwestern University came from out of state to visit him when they heard he was getting sick. “They stayed with me for weeks and...

Practical Pain Management: COVID Long Haulers and the New Chronic Pain Profile Most of the article is general info on long covid (and the possible connection with ME/CFS, fibromyalgia, POTS) but here is what some of the doctors said: Dr. Morlion weighed in on his perspective based on his...

Yes, I actually posted this because I'm not that impressed with the invitees of these new webinar series so far.

There are a lot of covid long haulers in my ME/CFS group who are new to this and are getting sucked into these therapies quite easily, including the spinal surgery one but also the apheresis one or all the YouTube coaches, or basically anything that they see popping up in the English-language...

This is the second installment in the diagnostics and treatments webinar series, the first of which was the one with the controversial Bruce Patterson. There is also another new webinar series "exploring the pandemic's long-term healthcare, policy, and economic impact". The first presentation...

My parents (who don't have ME/CFS) only had Pfizer. They felt nothing after the first two shots but were surprised to have quite strong (but typical) side effects after the booster. I don't know how common this is. As for me, I got Pfizer after two AZ shots and each time the side effects were...

Not much, but at least someone wrote about another ME/CFS and long covid related study and the good thing is that it appeared on a medical news site that is intended for doctors. (You are not even allowed to read 95% of their articles unless you prove you are a doctor but I guess the ones about...

Currently in my 6th year (very sudden onset, I basically never recovered after the EBV infection). First 1-2 years: started at my all time lowest, which was the lower end of moderate, then gradually (painfully slowly with relapses) improved. 3rd year: I made a huge improvement and became very...

More than 25 musicians from around the country will come together Friday, Jan. 7, 2022 to present "A Love Song for Hal," a live-streamed benefit concert that will raise money to support beloved Ohio musician, Hal Walker, in his battle with myalgic encephalomyelitis/chronic fatigue syndrome...

I just saw another article about her which talks a lot about her recovery and that she became a "fatigue coach". I looked her up and this is what I've found on her website: That’s why I set up Pamela Rose Coaching. As a fully qualified performance coach with NLP (Neuro-linguistic programming) I...

This has been published in the Lancet now, with the accompanying text somewhat changed in a few places. For example, in the original one ME/CFS was briefly mentioned, although not really in the context of being a similar medical condition: From a historical perspective, it took years to define...

Article in Medical News Today: Young people less likely to have long COVID than early studies suggested "The authors note that the higher-quality studies found a lower prevalence of all long-term symptoms. One of the study authors, Dr. Shamez Ladhani, a pediatric infectious disease consultant...

Full title: Cerebral Perfusion and Sensory Testing Results Differ in Interstitial Cystitis/Bladder Pain Syndrome Patients with and without Fibromyalgia: A Site-Specific MAPP Network Study Abstract Purpose: Fibromyalgia is a common co-morbidity in patients with interstitial cystitis/bladder...

This is a press release from a non-profit org in the US: https://finance.yahoo.com/news/diana-alex-klurfeld-launch-awareness-230000857.html "Because of these challenges, Diana and Alex Klurfeld are devoting this latest awareness campaign to calling attention to the need for increased research...

What is Long COVID? Experts Explain Symptoms and Answer Common Questions "This November, KQED Forum’s Lesley McClurg spoke with experts and a patient on what is currently known and being researched about the long-term effects of the virus: Angela Meriquez Vázquez, long-haul COVID patient...

I take the flu shot every year. When I went to get it for the first time, my (then brand new) GP started to look for the vaccines and said: Hm, I wonder if I need to open a new box. No, I'll just use the old expired ones from last year, we have to get rid of those too. Then he picked up a...

If anyone is interested: well, luckily I happened to have a bit better day, so I messaged Ádám Kósa about a week ago. I told him about the dire situation of Hungarian patients, that they get zero help from anyone and are basically locked out of healthcare, that education of ME/CFS at...

The ending is perfect too: Well, at least they got the pacing part right. But yeah, since this is what the NHS website says: I agree that as long as this is not accurate, there will be similar articles over and over in the media as many journalists will turn to the NHS for info, expecting...

I didn't have the bandwidth to watch the video but Cort Johnson has summarized it in a post if anyone's interested: Getting at the Heart of Post-Infectious Illnesses? Bruce Patterson Talks on Long COVID and ME/CFS/FM "On December 6th, InCellDx announced it hired a chief operating officer as...

Hm, I'm not sure. If you mean something like labyrinthitis, I've had it once and it was very different with a lot of constant spinning sensation and dizziness and nausea, which I never have with this. However, that was much much worse than these balance issues I have, so I can sympathize, that...