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Hmm, is he still promoting the same unevidenced treatments?

@Andy The missing Facebook post may be due to current issues with FB. I also posted something on my ME/CFS FB page today and it disappeared after a short time. It still exists though because I'm getting a few likes but it is not visible to me when I look at the FB page with my admin account or...

(I'll see myself out.)

The relevant part: Difference between feeling tired and chronic fatigue If you have persistent, crippling fatigue that lasts 6 months or longer, you may have chronic fatigue syndrome. “Chronic fatigue syndrome has been studied more in the past five to 10 years,” says Dr. Ankerman. “Before it...

ABSTRACT Introduction: Research regarding students with myalgic encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) has been limited. This study aimed to understand how their subjective well-being had been affected by their condition by exploring their experiences and sense-making processes...

Unfortunately, Twitter is really not popular in Hungary, so I have to stick with Facebook. (I have about 2500 followers there with about 450-500 group members but the algorythm is not my friend at all and most people aren't that much interested in advocacy to begin with - though a few pwME were...

So I sent a message to the Academy about the presentation above and they replied (my message was a list of questions about it actually). They absolutely avoided the topic about patients' threats or the claim that dozens of doctors left the field, they didn't address it at all. They replied there...

I have rewatched the video now and forgot to add one thing: he said the only reason LC is not called CFS is because doctors don't want to get involved in these kinds of things again, so it is just better to stick with LC.

So I decided to watch the long covid symposium of the Hungarian National Academy of Sciences but I only got to the third speaker when I decided to give up (although I semi-watched the next two but I was also too annoyed to really pay attention - I didn't miss a lot though: they mentioned...

VeryWell Health: How to Cope With Post-COVID Brain Fog "Jackson said that psychological causes of brain fog should not be ruled out because anxiety can cause many of the symptoms. That said, he also acknowledges that "a lot of COVID survivors are a little cautious and uncomfortable when they...

This is a Hungarian study and they also mentioned CFS later:

Full title: Severe Fatigue and Memory Impairment Are Associated with Lower Serum Level of Anti-SARS-CoV-2 Antibodies in Patients with Post-COVID Symptoms Abstract Background: Post-COVID manifestation is defined as persistent symptoms or long-term complications beyond 4 weeks from disease...

These are the first studies on long covid that earned grant from the Hungarian National Academy of Sciences. There are more actually because they have awarded grants to non-medical studies too in connection with covid and also medical studies in connection with other complications after covid...

Abstract The Boston University-based Gulf War Illness Consortium (GWIC) is a multidisciplinary initiative developed to provide detailed understanding of brain and immune alterations that underlie Gulf War illness (GWI), the persistent multisymptom disorder associated with military service in...

So my ME brain has totally read this as "Dog attacks as a subtype of FND". I guess I shouldn't give them ideas though. :speechless:

I keep seeing this guy posting his writings frequently in one of the ME/CFS groups on Facebook (it is so frequent it is almost spamming). He rarely uses any references and when he does, they point to his own earlier writings with no references. I think in one of the Facebook comments he even...

Chartered Society of Physiotherapy: NICE publishes new guidance about ME/chronic fatigue syndrome "The publication of the new guidelines follows a delay to the guidance earlier this year. At the time the Institute explained that this was due to the complexities surrounding the condition...

More on this in the Guardian: UK launches trial of drug to tackle fatigue in long Covid patients

Fictional neurological disorder.

Symposium at the Hungarian National Academy of Sciences on 16th November: Current issues in post-COVID syndrome There will be a live stream on YouTube too, so anyone can watch it. It will take place between 10:00 and 16:30, quite a lengthy event. The programme (Google translate): As you can...