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I can relate! There is a review among the most recent threads with the title "Concussion and the Autonomic, Immune, & Endocrine Systems (...)", which somehow turned into "Confessions on the Dancefloor (...), 2025, Pertab et al." to me. :oops:

Retraction Watch: Thousands demand withdrawal of review article recommending exercise therapy for chronic fatigue syndrome Cochrane abruptly ceased communication and made little effort to explain why the pilot was abandoned, said Hilda Bastian, a meta-scientist, writer and cartoonist in...

I don't have a strong opinion about this, just would like to add something about ME/CFS Unravelled. (I know this wasn't one of the poll options but has been suggested in the comments.) CFS Unravelled is the title of Dan Neuffer's book and he also runs a website by this name. Neuffer is one of...

This study has reached us too, I have seen articles about it in two well-known news outlets here. This was also one of those extremely rare (or non-existent, rather) instances, when someone other than me used the word ME/CFS in an article, instead of just chronic fatigue syndrome. So I would...

Another thing is: if you remember, last year I asked the National Centre for Public Health to rewrite their page about ME/CFS on the governmental website Egészségvonal ("Healthline"), which is kind of like the NHS website with information for the general public. They rewrote it without any...

Btw, the guy I have to meet, János Réthelyi, the Head of the Department of Psychiatry, seems to be mostly interested in the biological background of psychiatric diseases, the genetic background of schizophrenia and ADHD and the genetic background and environmental risk factors in developing...

Dr Beáta Sebestyén, the Head of Department, Department of Quality Improvement (from the Ministry of Interior) just called me on the phone after I sent them a short email yesterday asking about the promised consensus recommendation. I asked how it is going and why they said "they found...

Radio Free Europe has created a video about long covid in Hungarian. It is about 10 minutes long and two members from my ME/CFS Facebook group share their story and experiences in it, Beáta Szabó and Edit Tarjányi (they are the only pwLC in it). The reporter also interviewed Ádám Dénes brain...

An article was published about this study, with one of the researchers speaking about it. The article is kind of self-congratulatory, also, they are developing a test. No mention of ME/CFS or PEM or similar. I asked ChatGPT to translate: A groundbreaking long-Covid study has been conducted at...

Oh yeah, I remember when I was a teen, violent movies and video games and Marilyn Manson personally were responsible for all the teen violence. Also, there was a book in our high school library titled "Satanism and Rock Music" about what terrible effects rock music has on youth. We were excited...

Full title: Transcutaneous electrical nerve stimulation for fibromyalgia-like syndrome in patients with Long-COVID: a pilot randomized clinical trial Alejandro Zulbaran-Rojas, Rasha O. Bara, Myeounggon Lee, Miguel Bargas-Ochoa, Tina Phan, Manuel Pacheco, Areli Flores Camargo, Syed Murtaza...

I was very athletic before my ME/CFS onset. I did strenuous workouts regularly, HIIT and strength training mostly. These were really hard workouts, not for untrained or moderately trained people. Since this was a lifestyle for me, whenever I caught a cold, I kept doing my workouts like nothing...

There was someone in my FB group who lives in Switzerland and she mentioned how great it is that there are rehabilitation clinics for long covid there and she even said there were some special programmes for people that present with ME/CFS type symptoms (so people who have PEM, I guess?). She...

Katherine Huang, Alex G. C. de Sá, Natalie Thomas, Robert D. Phair, Paul R. Gooley, David B. Ascher & Christopher W. Armstrong Abstract Background Diagnosing complex illnesses like Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is complicated due to the diverse symptomology and...

The final version of the detailed critique of this review is now published on mecfs.hu in Hungarian: Kritika a Long COVID – neurológiai vagy szomatizációs betegség? publikációhoz (Ideggyógyászati Szemle) You can also read the Google translated version here, although due to the language...

Interesting claims from Bettina Hohberger from the German Fatigatio Facebook page (FB translation)...

I'm wondering about how to address all this. I'm not sure there is a point in sending a letter to the paper, Janszky is a consulting editor there, whatever that means. (It is called Ideggyógyászati Szemle/Clinical Neuroscience and it is indexed by PubMed, Google Scholar etc.) I'm also not sure...

Something else I forgot to add: Janszky is the neurologist professor who gave a presentation at the LC symposium of the Hungarian Academy of Sciences and which basically was a "best of Michael Sharpe, etc". He talked about militant ME/CFS patients threatening researchers, how researchers were...

I have read it and it is pretty awful. A quick summary: The first half is not so bad, it is a review of all the biomedical theories about the etiology of long covid. However, there seems to be a clear BPS bias towards psychosomatic explanations in the second part. There is a very heavy...

Background and purpose – Post-COVID condition (also known as long COVID) is a syndrome characterized by persistent symptoms following a suspected or confirmed SARS-CoV-2 infection, lasting for at least two months and are not attributable to other conditions. The most common symptoms include...