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Paul Garner tags Professor Trudy Harpham, giving the strong impression that she is the 'teacher' to be thanked for his recovery. Harpham is a health sociologist with an interest in behavioural interventions and child abuse. I have no idea what she taught Dr Garner but we can be reasonably sure...

3) and patients with exercise intolerance are excluded yet many patients with #LongCovid or #POSTCOVID19 do have exercise intolerance Surely just about anyone with 'Long Covid' has exercise intolerance. It is part of what we call feeling ill. It need not imply PEM, just that trying to do stuff...

This does not look like meaningful science. It does not even say what research is to be done. If is all on a secret commercial basis I see no reason why patients should expect to need to contribute.

Presumably it will be a case of measuring outcome with a questionnaire 'was the treatment brilliant?' with a tick box for 'surreally excellent'. I am beginning to realise that those five words 'we are proud to be' mean 'we know we are complete jerks, and these five words prove it but aren't we...

Without clear acknowledgment, honest communication, and careful patient-centred research, patients face unsatisfactory outcomes. Such mistakes must not be repeated for long COVID. I am afraid I read this as: Make sure you keep telling these people their illness is 'real' (they like that). Sound...

All I read was the usual blather. Where was the U turn? @Andy They seem to deal with the ME activists by deliberately mentioning chronic pain instead, just to make sure that they don't stir up any more hornets. Usual drivel about multidisciplinary care. Nothing about how none of this would be...

Yep, Dr Fink has admitted to being a complete phoney.

No, nothing overlooked. I have spent some time searching into this as people know and there is no reliable evidence for ME/CFS being associated either with EDS or mast cell disorders. This is where the level playing field comes in. If it is hope that the guidelines will change in recognition of...

It wasn't an understanding. Lots of viruses were found and most of them shown to be irrelevant. The mistake was to think that every unsolved problem was due to a virus - and that mistake keeps popping up every time someone has a new test they want to sell. We have the ability to track and...

We have known for decades. Nothing new here I am afraid. Hidden viruses were the explanation for everything when I was a kid sixty years ago.

I think it is best from not to get involved in management of individual patients. I have no real expertise and I know nothing about the case. I think the problem we are faced with is that there are no medical professionals with a a genuine understanding of severe ME. There may be some with...

It is all much more complicated. Raynaud's is reasonably common but I doubt it has any link FM or ME. A much commoner reason for blue feet is called acrocyanosis - which gets little attention because it does not matter. There is also perniosis or chilblains, and other things. The document is...

A complete muddle.

I think I met this lady at the DecodeME meeting. If it is her, as I think it is, she is an expert. Slightly dry in manner but highly intelligent and potentially of importance to PWME. She is into genetics and also fibromyalgia. Very biomedical. I reckon she is an expert studying the condition.

I don't think the authors know what it is they want to study. They talk of age-related fatigue but that is not the same as fatigue, in comparison to no fatigue, in the elderly. Fatigue in comparison to no fatigue in yougsters might be the same. Moreover, unless they have looked carefully to see...

All I think one can say in the UK is 1. We know that the great majority of people stop being infectious after about 10 days 2. The UK testing systems a shambles, being organised by incompetent commercial services rather than the NHS. Nobody is likely to be tested when they need it. Quite often...

Maybe Snow Leopard's point is that there is no simple answer. If they have tested negative on a good test and repeatedly probably not, otherwise it is a matter of probabilities, with the chance of being infective being small but not zero.

I think the author reveals his own muddled thinking pretty much throughout. Every medical student should be in a position to write this article - rather better. Fortunately the author is now retired! I am afraid I think this is another example of how the people who like rabbiting on about...

Yes he seemed to be saying that unlike you he does not trouble himself with the details of evidence quality, he just likes to call things crap when it suits him. And of course he does not want to slur anything like CBT if it might upset people.

Generally people don't bother and just go through the motions.