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  1. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Seems that Louise Kenward is taking up the suggestion made by some here for the health professionals to get the psychotherapy rather than the patients! Maybe not quite in the same way though.
  2. Jonathan Edwards

    BPS attempts at psychologizing Long Covid

    So Mr Vogt already knows that his treatment works for Long Covid. Remarkable clairvoyance.
  3. Jonathan Edwards

    UK - NHS England online tool and clinics for long Covid.

    Indeed. I wonder how many of the 14 had each syndrome? 3, 4, 4 and 3?
  4. Jonathan Edwards

    UK - NHS England online tool and clinics for long Covid.

    ?250K £160 per patient. Which is about two clinic visits with one professional, or half a visit with a multidisciplinary team of 4.
  5. Jonathan Edwards

    UK - NHS England online tool and clinics for long Covid.

    A good start would be to produce something grammatical. Is that more-recent evidence or more recent-evidence or is it maybe no real evidence at all? If in doubt, blather, it seems.
  6. Jonathan Edwards

    UK - NHS England online tool and clinics for long Covid.

    Chartered Society of Physiotherapy @thecsp Our reaction to today's announcement about the launch of 40 #LongCovid clinics in England. Looks like another excuse to bid for more jobs for the girls. Twitter seems to be a great propagator of advertising disguised in virtue signalling.
  7. Jonathan Edwards

    Almost ten years – is GET going?

    This looks like a crossword clue: Almost ten years – is GET going? I think the answer must be 'tenet is greasy' implying the BPS slipping down the pole?
  8. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I see that Adam Gaffney writs for the Guardian on USA healthcare. He is an advocate for a National Heath Service.
  9. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    There was a time when nobody associated with Harvard would make themselves look as ill-informed as that. Times have changed.
  10. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I think this would simply encourage psychiatrists to feel they are right to dismiss the guideline as activism. As Prof Maria Fitzgerald pointed out at a CMRC meeting, all illness is physical, including mental and psychiatric illness. Distinguishing physical from mental illness is bogus - just...
  11. Jonathan Edwards

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This isn't academia @Esther12. It is a commercial conference outfit for marketing to other people wanting to make money out the situation. These things have been around for years. The problem now is that real academic meetings seem to have faded out into CV polishing venues for juniors.
  12. Jonathan Edwards

    A core outcome set - What core set of relevant health outcome measures should be used for trials of treatments for, and managing symptoms of, ME/CFS?

    This is a big topic that we have spent some time on before I think. Just to note that the account of the ACR criteria by Dr Duckworth at rheumatoidarthritis.org is garbled and fails to point out the reason why it is a useful score. It is useful because it takes key subjective measures and also...
  13. Jonathan Edwards

    Profile of circulating microRNAs in Myalgic Encephalomyelitis......(2020)Moreau et al

    I think before putting any particular interpretation on this we need to see the difference between a group of PWME before and after cuff massage, and a group of PWME before and after a similar period of no massage plus a dose range in between so that there is a dose response curve indicating...
  14. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Mrs Floptop seems to be planning for a smooth transition to another 4 year term for the said 'experts'.
  15. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    This is to me the most important unfinished business. I am not pushing it simply because my position is already made very clear in my witness statement. CBT should not be mentioned. CBT is unethical. Me saying that again is redundant. but...
  16. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Maybe Dr Miller had not read my expert statement at that point. Re-reading it I thought that was quite, you know, bold, in places... Or maybe italic? !**;) Edit: I also think they must have redacted Simon Wessely. That seems a bit harsh.
  17. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Clare Ogden manages to miss the point abut 2007, and since.
  18. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    In many ways I see us coming back to the discussions I had with a number of people now here about damage limitation for ME services. There is a strong argument for disbanding all the multidisciplinary teams providing management with no evidence base but then there would be little chance of...
  19. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    My view on CBT s laid out in my expert witness statement. There guideline has not taken my advice. There has been significant acknowledgment of the need to keep away from ME style CBT but I still see a problem. In essence my concern is that under psychological support we immediately have CBT -...
  20. Jonathan Edwards

    NICE ME/CFS draft guideline - publication dates and delays 2020

    I think this wgllbea crucial issue. My suspicion is that it may be suggested that CBT 'tailored to the case' canoe recommended. This seems to beDaniels preference. But although tailoring is perfectly reasonable there needs tone some indication what is being tailored. There should at least be a...
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