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I don't understand why not. It can cover both and include advice on PEM for those that have it. If no specific treatments are to be recommended then there isn't a difference. I see no reason to think there is any more justification for recommending GET or CBT for people without PEM rather than...

No, counselling is not psychotherapy. It is providing moral support and practical advice. There is no reason to think it requires a clinical psychologist. I realise that clinicians on the NICE committee may have a slightly different perspective but I can see no reason to include the term CBT in...

Why should patients with ME be able to access psychotherapy on the NHS if we have no evidence that it is beneficial for such people - period? And quite likely no reliable evidence for any people. Moral support is part of being human but I see no reason to call it psychotherapy.

From what I can see in the literature you are probably right. Incidence at a given age seems to be the same for men and women overall, although studies in different countries vary (one in the UK put incidence higher in men). There are a lot of papers talking about reasons for dementia being...

I am not actually disputing that. The point I was making relates to her research. That may do harm to children recruited into studies but I am sceptical that the research itself has made much impact. What makes an impact is 'expert clinicians' going round giving lectures on how to manage an...

That I can believe.

I think NICE in the past has specified that pharmacological interventions are not recommended so there seems to be a precedent. It would certainly make sense to apply the same principle to therapist-delivered treatments.

You have to remember that NIHR was invented in order to bypass ethical and quality concerns in the first place. We had the MRC but it seemed a bit picky for some with political agendas so NIHR was set up to allow people to prove what was convenient to prove. NIHR is not going to change its...

In this particular case, knowing EC well, I can be pretty sure it is the former. She is a follower, not an innovator. I do appreciate the current impact of the received wisdom and that Crawley is feeding in to the narrative. On the other hand it may be in the long run that all the publicity...

If you can nod without bending your neck forward (just bob your chin down) your C1 is not fused to your skull.

But that is my point. Crawley is funded because she produces what people want to hear. She is a symptom of a general malaise. And I don't think her research has actually affected anything. The LP study is recognised to be the rubbish it is. Her attempts at epidemiology and biology are...

I agree with Andy that this is bonkers, irrespective of who is involved in what. Crawley's research does not actually do that much harm, I suspect. It is a symptom of a way of approaching ME/CFS, not a cause. If she left the field overnight the remaining clinicians would carry on as before...

This post has been copied and following posts moved from this thread: Possibility of ME or PVFS after COVID-19, Long Covid I agree with Andy that this is bonkers, irrespective of who is involved in what. Crawley's research does not actually do that much harm, I suspect. It is a symptom of...

I actually think is much worse than that. They are using it backwards, it seems to me. Predictive coding has nothing to do with experiencing the predictions. You experience the deviation from predictions. There are mechanisms by which you can voluntarily elicit experiences such as colour which I...

I am pretty sure this is gobbledygook. This is not how the predictive coding theory works. The only paper on predictive coding I have seen is from Mark Edwards and I was pretty sure he had got it back to front there. It doesn't explain anything this way at all. It should produce the opposite.

I for one would be very happy to believe that multidisciplinary team clinics were beginning to provide sensible and sympathetic advice and care. The problem as I see it is that if BACME members want to convince us that they know what they are doing they need to say exactly what they are doing...

I hope to look at these videos but I see they are quite long. I appreciate that the team seems sympathetic, but do we have any reason to think that they have any more evidence for their theories and recommendations than anyone else? Maybe they are relaying the practical experience of patients...

I do not think it is an established term. There is no particular reason why a trial should not be exploratory and randomised but exploratory is a pretty meaningless term unless you state what it is you are exploring. Phase 1 and 2 studies may be considered exploratory but normally it is made...

I read this as the editor, probably with input from editorial board (which includes Esther Crawley), seeing this as a convenient face-saving way of not upsetting any of their contributors. An editorial mistake is just a slight oversight. It does not put any pressure on any authors or on any...

I have good reason to think I know how I come across to these people. (I get feedback.) Nobody has challenged me for a while now. People know that I do not say things without justification. The main effect of making critical statements in my case seems to have been to be invited into...