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  1. Forbin

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    And talk about "cost effective"... a quick Google search shows that you can get a voodoo practitioner to cast a spell for as little as $300! [Possibly less if you have a coupon.]
  2. Forbin

    Quantitative Electroencephalographic Assessment of ME/CFS. Support for a novel diagnostic protocol, 2019, Pellegrini. Student thesis.

    There seem to be some psychiatrists who are promoting the use of QEEG as a way of accurately distinguishing one psychiatric condition from another. This 2018 article, however, says that it's important for psychiatry to distinguish QEEG's promise from the "hype." QEEG Recordings Not...
  3. Forbin

    Maureen Hanson talk at OMF Symposium 2019

    As @andypants said, the video of Dr. Hanson's talk makes it clear that she's making a tongue-in-cheek suggestion that ME/CFS must be caused by a "genius virus" because the illness it produces is not taken seriously, thus ensuring the survival of the "virus" due to the lack of interest in...
  4. Forbin

    Denmark: Interview with Per Fink in Dagens Medicin

    The old "This food is terrible - and such small portions!" defense.
  5. Forbin

    Maureen Hanson talk at OMF Symposium 2019

    I think they'd be on safer ground claiming that it's triggered by an "exposure" to something. That would cover viruses, bacteria, parasites and fungi, as well as things like toxins - all of which could occur in a localized "outbreak." I believe the leading theory on GWI is toxic exposure (which...
  6. Forbin

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    A couple of times, Ron Davis mentioned that they were hindered because they didn't have access to a "high-end" mass spectrometer. I wonder how expensive such a device is. From what little I've seen, the "high-end" that shows up on the internet seems to be between $100K-$200K. Of course, the...
  7. Forbin

    Sensory sensitivities: research and theories?

    That's interesting. Sensitivity to the eye drop may vary from person to person. Every time my eyes are dilated (most recently a month ago), I'm effectively blinded by the bright sunlight when I step out of the optometrist's office. I have to wear one of those disposable sun shields they give you...
  8. Forbin

    Sensory sensitivities: research and theories?

    Migraine can cause light sensitivity. Also, some ingested drugs can cause the pupils to dilate, which I would assume would cause light sensitivity similar to the topical dilation you'd receive from an optometrist in a retinal exam. So, there'd be at least two possible mechanisms for light...
  9. Forbin

    Open Institute for Neuro-Immune Medicine: ME/CFS: Detecting Mycotoxin Subgroup

    So... could mycotoxin producing fungi in the gut be a source of constant exposure? I know Ian Lipkin has mentioned looking into booth fungi and viruses in the microbiome, in addition to bacteria.
  10. Forbin

    An Isolated Complex V Inefficiency and Dysregulated Mitochondrial Function in Immortalized Lymphocytes from ME/CFS Patients Missailidis et al. 2019

    Does the paper address how this impairment in Complex V could happen in enough mitochondria / cells simultaneously to account for the "sudden" onset often seen in the illness? It seems like some sort of exposure to a system wide "trigger" would be needed (or some kind of signaling in response...
  11. Forbin

    Calling all physicists/science people

    Should we alert the BMJ? They may want to publish these findings. ;)
  12. Forbin

    Podcast: TWiV Special: Call me David Tuller

    From the Guardian article: From David's repsonse on Virology Blog: I think David is being too generous here. Most people would probably take a construction like "a man called David Tuller" as a way of implying that David has no credentials (other than being a "tough kind of activist" and...
  13. Forbin

    Vestibular issues

    I had been diagnosed with nystagmus several months prior to all these tests. An internist noted it a couple of weeks after onset. It's possible that I just don't remember a spinning reaction to the caloric test, or it might have been less noticeable to me sitting in the dark. I'm also not sure...
  14. Forbin

    Vestibular issues

    Let's see... bio-feedback, 2 months of psychotherapy (until I showed up with my vestibular results and was "fired"), half a year of multiple, self-injections for food and pollen allergies on alternate days, rotation diet, eye-exercises, niacin therapy, several 24 hour holter monitors... none of...
  15. Forbin

    Vestibular issues

    Lol! Actually, were my dizziness still like what it was in the 1980's, I probably would have already gone. It's safe to say I've tried weirder things.
  16. Forbin

    Vestibular issues

    I'd been on trains, planes, boats, amusement park rides, etc... prior to ME and never developed anything more than temporary unsteadiness, but ME began for me with an "out of the blue" attack of dizziness that seemed like it was it was going to resolve in a few days, but then got worse again and...
  17. Forbin

    Vestibular issues

    A few years back, I took and overnight train ride and was surprised at how "dizzy" (the "bobbing" back and forth feeling) I was when I got off they train. It was like I was back to where I was 15 years earlier. I'm not sure if it was the motion of the train or the change in altitude over a...
  18. Forbin

    Vestibular issues

    This sounds a lot like what happened to me: post viral onset, intense dizziness for several years, which improved maybe 50% over a period of months in the fourth year. Then the rate of improvement plummeted, but not to zero. It took 10-15 years for most of the remaining dizziness to abate. I no...
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