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    Michael Sharpe skewered by @JohntheJack on Twitter

    There may be some whose insurance will not pay out unless they try it ...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Had we had " specialists" I am sure that my daughter would be even worse. For a child to be able to regulate activity is a hard thing - to increase it with the premise of recovering would be easy - it's something that would give you your life back, who wouldn't. If you are told pushing through...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Just need to find a husky drawn sled with a seat for my daughter! She might only last 10 mins but it would be the best 10 mins ...
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    Action for ME have "reworked our treatment and symptom management page" and "updated our pages on GET and CBT"

    Underwhelming
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    Michael Sharpe skewered by @JohntheJack on Twitter

    He is a member here you could DM him ?
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    Recognizing and Improving Care for ME/CFS, FM and ES/MCS (Canada)

    Prevalence rates interest me as the cfs figure seemed high. Given there may be environmental factors in causation and/ or perpetuation prevalence rates v location would be an interesting study.
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    Recognizing and Improving Care for ME/CFS, FM and ES/MCS (Canada)

    Duplicate thread merged in from here: From @DxRevisionwatch on twitter. Interesting article. Prevalence rates - is this " official" diagnoses or including self report. http://www.cfp.ca/content/64/6/413
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    Children’s views on research without prior consent in emergency situations: a UK qualitative study, 2018, Woolfall et al (including Crawley)

    What is the age range for FITNET? Usually a parent is consulted to enable consent to be given - however as we move to a more " online" treatment scenario, in particular for psychological input, a parent may have no input. Seems to me that a way is being prepared...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Hoist......petard
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Re the last tweet. Is the clinical trials book the one that clearly identifies difficulties re bias and blinding that simply seems to have been disregarded when designing the trial? Simply alluding to this would seem to infer that there were no methodological flaws. ..
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    Bath Fatigue Clinic - example of advice that harms child

    @Mike Godwin perhaps this thread is worth a perusal to demonstrate the effects of poor research spun as significant
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    Royal College of Paediatrics and Child Health conference, 13-15th March 2018, "Children First – Ethics, Morality and Advocacy in Childhood"

    Does anyone have any insight into this - Trudie Chalder seems to be following up on adolescent psychology in BABCP conference ( also in Glasgow) ....
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    Question concerning XMRV

    I meant shingles chickenpox age 4 years shingles 9/10 years Always seemed weird, but by GP responses ( not overly bothered), I did not take it as being problematic....
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    Question concerning XMRV

    thank you. it seems i am not completely barmy after all!
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    Question concerning XMRV

    Thanks @Jonathan Edwards . Our GP just shrugged their shoulders and did not think it worth any further investigation . It has always seemed unusual. We have a number of dots that havn' t been joined, and i think that may not be uncommon for ME: it is the sum of insults, in our case with...
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    Question concerning XMRV

    @Jonathan Edwards - how common is it to get shingles aged 9/10?
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Statins share the same issues with raw data and data manipulation that we are all painfully familiar with. I' m not sure anyone could confidently make claims as to their efficacy. http://bjsm.bmj.com/content/early/2018/01/16/bjsports-2017-098497
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    Eosinophilic colitis caused by neuropathic agents in a patient with CFS (2018) Fragkos et al.

    I do wonder that If this person had not been in London ( assumption due to hospital details) and/ or If this was to happen in a couple of years time with IAPT roll out / MUS agenda/ IBD and SNOWMED codings Just how seriously this would have been investigated....
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Sorry have not read the document ...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    I have read the document, so apologies if this is covered. The impact of losing employment is perhaps more complex. Health may be impacted when the closure and redundancy is associated with a major employer and there is little opportunity for other employment - such was the case in the 1980s...
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