Search results

Is this the FND research? https://www.s4me.info/threads/cmrc-agree-on-a-new-purpose-objectives-and-values-which-replace-its-previous-charter-march-2018-ec-also-to-leave-the-board-of-the-cmrc.2809/page-9#post-51054

where is any follow up on harms? how were harms recorded? the issue may be that too few with ME were included due to selection criteria?

great news - congratualtions @JaimeS !!

Sorry - very small children!

I queried mito disease with paediatrician. I got a very weird look and was told that it only applied to very all children (!)

The reaction to antibiotic chimes with our experience. My daughter tested positive for H Pylori ( gp idea re fatigue as no overt symptoms other than burping). Antibiotic made her feel much better . There was a thread that suggested this response could be due to D Lactate Acidosis ( but gp not...

I think it may come from GWI study first. I don' t know if he is being engaged on that. So perhaps a double whammy to come ....

Vaccination may be part of risk - perhaps if body is already in inflammatory mode. Detox issues may also increase susceptibility with use of adjuvant From the 5 people i know with ME , 4 developed the illness after vaccinations. (3 tetanus, 1 multiple vaccinations to travel abroad) From...

From someone with a somewhat tangential thought process, your reports and advocacy have been much appreciated - all the more so for the clarity in explaining complex issues. I hope that retirement brings some relaxation (!). From someone new to this much misunderstood illness, thank you for...

And sadly , if your 8 year old nephew was affected , it would be a different set of guidance that would apply..

Great news :)

Another instance of people framing theories based on their preconceptions? If this is the measure of critical thinking the education system has failed us

But very useful if you can measure it in different " modes" - was this not one of the many issues in PACE?

Be aware that the vaccine is not effective for all strains it needs boosted like a tetanus - ie not a once only This is info that was not part of the school briefing pack like tetanus it is designed to provoke a high response - so ensure that you are feeling as 100% as you can I have a...

Yes - aids just reinforce sickness behaviour. We had it formally recorded in paediatric notes when we turned up to a clinic appoint ment in a wheelchair. Not having a blue badge meant we had to park a huge distance from the main entrance - the previous visit induced a tachyicardic episode later...

It's similar if you are Scottish too :)

Perhaps with info on viral and parasitic infections she may have learnt something. Perhaps the strength of " stories" can be the catalyst for change if patients own them. Looking at how other scientists carry their community with them , engage and move things forward , and through dialogue...

@dave30th perhaps worth highlighting this given the need for evidence based info has included LP .

IAPT roll out

Good luck finding a physician that will prescribe B12 injections. If it' s not a defined treatment noone will stick their neck above the parapet and prescribe it. Incredibly hard to get, though other fatiguing illnesses have no problems. Please also do not think it is harmless. Sublingual B12...