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Parents will have significant concerns. Not just in the local area, but nationally.

This is not the sideways move that bodes well for children @chicaguapa @afme through their advocacy with falsely accused families, and recent stances may consider a Facebook post to confirm their views. Many parents will have significant concerns...

The International pediatric primer has a section on this - it also has confirmation of severe ME in children - perhaps Dr Rowe could be invited to comment from primer below copy of primer attached as PDF

Welcome @Docsimsim . I read your paper via PR last year -from the mother if a teenager affected it was much appreciated. I think at the time i commented that cbt was deployed on the same basis that French is still the main second language taught in schools- not because it is remotely of any...

As a newbie to the ME world, it has been on online forums where i have become acquainted with the history, gained the best advice, become empowered to advocate, brushed up on stats, learned my way around scientific papers, and found solidarity and solace when it seemed the world was slowly going...

I hope Tania on PR takes advantage of this.

CBT/ GET.

How much other research is still unfinished/ unpublished and how does this bode for the scrapping of CNT/ GET? If the basic diagnostic criteria is wrong, change becomes more difficult.

Interesting I' d looked at fructose due to the role it plays in both NAFLD and insulin resistance with more of a molecular overview. The deciding factor is probably the amount ( i eat a lot of fruit and always have ) ie what is " chronic" fructose consumption . This was a reference i' d looked...

Fructose is the one sugar that's not used by cells for energy : it' s dumped in the liver and can contribute to non alcoholic fatty liver disease - explanation below https://www.dietdoctor.com/fructose-fatty-liver-sugar-toxin

I have concerns re children given that the bulk of research is frankly diabolical and not concerned with ME at all.

Whilst I think it's generally accepted that Oxford is obsolete , there is still a problem agreeing a criteria for research. Fukada isn't great either and there is a lot of research using this one too.

Thanks @hellytheelephant I never thought of gumtree- i feel a search coming on ....

I' not much good at twitter , but it might be something coyne could highlight in his own inimitable way?

Stigma and pride are an awful combination. My daughter would not countenance one. We got one on loan from red cross for going away for a week and she did use it as she didn' t know anyone Have had a couple if red cross loans and her mindset is changing - i think some of this is coming to...

I don' t know. Storm in the head sounds awful. There is dome thought that T2 levels modulate fat burning. It could be this for my aunt- she has gone from hyperthyroid and partial thyroidectomy in her 30s to hypothyroid now .

Keto would work for those who have pyruvate/ glycolysis issues- fats being an alternative energy source. Also good where insulin resistance / glucose metabolism is affected. However there is a subset whose lipid metabolism is affected and who could not manage keto. Whilst the focus is...

Coyne has a few good tweets re ACE definitions, prevalence and basic crap methodology

Don' t know if this is the same ? https://jaxmecfs.com/2018/03/08/release-of-the-ninds-common-data-elements-cdes-first-draft/

Good luck accessing anything other than standard testing.