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"This article belongs to the Section Long COVID and Post-Acute Sequelae. Click here to see a list of 23 papers published in this section."

Long COVID Is Associated with Severe Cognitive Limitations Among U.S. Adults Rolake Neba, Iman Mohamed, Theodora Iwudibia, Jahnavi Pinnamraju, Usha Sambamoorthi [Line breaks added] Abstract Long COVID is characterized by persistent symptoms following the resolution of an acute COVID-19...

Long COVID and the Brain: A Retrospective Study of the Neuropsychological Manifestations of Long COVID Alexandria N. Plant, Ameer Z. Rasheed, Mira Hasan Background The purpose of this study was to investigate the incidence and impact of neuropsychological symptoms related to long COVID...

Thanks. I updated the thread to be about any media that's good for sharing to grab people's attention.

I think it'd be good to compile the best attention grabbing videos and other media (art, memes, poems, etc) about ME/CFS that are good for sharing on social media to spread awareness. Maybe things that would be good to share on May 12th. I really like these two, both originally shared by...

Nope, nothing at all that I noticed.

Psychosocial Nursing Diagnoses of Individuals With Myalgic Encephalomyelitis-Chronic Fatigue Syndrome: A Descriptive Study Cristina Oter-Quintana, Almudena Alameda-Cuesta, Pedro Ruymán Brito-Brito, Ana Isabel Parro-Moreno, María Teresa Alcolea-Cosín, Teresa González-Gil, Valentín...

Unfortunately, I don't think it has any effect for me, preventing PEM or otherwise. I tried twice 30 minutes before activites I had to do. 2400 mg before a grocery trip and 800 mg before a dentist appointment. Still got a crash the next day both times. The day of the appointment, I had a wired...

I think by 24 weeks they just mean duration of monitoring and the drug is only administered for the first three weeks. I added the intervention description to the first post and here:

Sure thing, done.

Nice to see these objective markers of improvement, but hopefully it's based on an actimeter and not self-report. The primary outcome is "Performance Status". I found a website that has the score descriptions: Another auto-translated Japanese source talking about this score.

Detailed Description The efficacy and safety of rituximab (genetical recombination), a CD20 antibody, on ME/CFS symptoms after administration to patients with myalgic encephalomyelitis/chronic fatigue syndrome will be compared in an exploratory, placebo-controlled, double-blind fashion. In the...

Risk of post-acute symptoms among adults: A comparison study of severe COVID-19, pneumonia, and influenza Caroline M. Schaefer, Trudy Millard Krause, George L. Delclos, Raymond S. Greenberg [Line breaks added] Background A retrospective cohort study was undertaken to assess the relationship...

They used transcranial doppler. Maybe extracranial doppler would be more sensitive: Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia: A quantitative, controlled study using Doppler echography (van Campen et al, 2020, Clinical...

I think I've done something similar on study surveys. I'm not totally sure why. I guess it feels like it's asking "apart from the main thing in question that we've already asked about, how would you say your health is? Got autoimmune disease, cancer, diabetes, poor dental health?" And I'm mostly...

Old study, but posting because of more recent research into T cell exhaustion. It's hard to know if changes in the observed phenotypes of the T cells actually affect their ability to kill cells, but this study found that CD8 cells from people with ME/CFS (CDC criteria) showed decreased killing...

Immunological abnormalities as potential biomarkers in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Ekua W Brenu, Mieke L van Driel, Don R Staines, Kevin J Ashton, Sandra B Ramos, James Keane, Nancy G Klimas & Sonya M Marshall-Gradisnik Published: 28 May 2011 Background Chronic Fatigue...