Search results

To me, the way these things are applied seems to be a misunderstanding of what they are and how we tend to approach them in contemporary culture. You used the example of aikido - but a true master of any martial art will have taken decades to get to where they are - 10s of 1000s of hours of...

I've done a pdf doc of docs - but it's a bit too big to upload here (2.4Mb), so PM me if you want to be sent it... Update: See below...

Oh I'm sure they'll appreciate that! :rofl:

Well that's my weekend sorted then!

And by Sharpe. From The Scandal of Poor Medical Research: "much poor research arises because researchers feel compelled for career reasons to carry out research that they are ill equipped to perform, and nobody stops them." I really don't think they realise that they are doing anything...

Another reminder that this thread is publicly viewable:

Thanks @Esther12 - I've quoted the quote at them. Who is David Jameson? [Aha - https://www.bmj.com/rapid-response/2011/10/30/dont-ignore-facts Mr Persistent Burnout Theory - http://www.mind-body-health.net/persistent_burnout_theory_2004.html] Is MS aware he thinks that CBT is merely a placebo?

Reports like this are so important to collect - but is there any way to directly link them with the PACE trial? Documentation? Patient ID numbers? It needs to be done systematically. Ideally one would want to collect both good and bad testimony; but given they have claimed that no-one was...

Well according to them, there weren't any, so there was nothing to follow up. As I said in the thread, there is a big problem if a therapy consistently tries to reprogramme patients' experience of harm. They are telling patients to dismiss their feelings that exercise/activity is harmful - so...

And this makes me especially cross:

This is one of the things that most bothers me about PACE. That they would run a large randomised trial based on an unproven hypothesis, and one which they have not even designed the study to test. and I also conversed with this person - but it was the same reverse thinking. They can't...

TWiV have just done an episode on this very topic... http://www.microbe.tv/twiv/twiv-496/ Good discussion of the issues, including safety, adverse reactions etc.

"How many doctors have even recognised that CFS/ME sufferers are genuinely ill...?" To which I said, "ouchy!" But it is probably more complex to unpack...

Aha!

Heresy? Really?

He's denying the existence of POTS now... :facepalm:

The tone of the question seemed to suggest it: "vaccine *damage* *leading to* (ie, causing) ME/CFS" rather than, say, asking whether ME causes people to be more sensitive to vaccines (such as HPV vaccine).

It's a big problem, because it is so hard to remain unaffected by all the biases. Many people come forward because of the expectation of an effect, even if it isn't true. Once people have an idea that something causes something else, it is almost impossible to shift. There are just so many...

This popped up on my Twitter feed... The antivax undercurrent of such a question makes me feel very uncomfortable.

Indeed. The concerning thing is that behind all this is the notion that as long as they have been seen to have followed the rules and ticked all the right boxes, then whatever they do is fine, when actually the most important thing is to understand *why* they are doing these things, and that...