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As Groucho Marx put it: "If we had some ham, we could have ham and eggs, if we had some eggs."

Would this theory imply that (what we currently call) ME/CFS and post-viral fatigue/illness are the same thing, just that in some people it resolves fairly quickly and in others it doesn't?

In my cynical moments I think it isn't an accident that these trials are being done with a confused definition of Long Covid that lumps together different conditions so that no meaningful results come out of it. Because meaningful results would be quite inconvenient. I don't mean that's what...

They [the Department of Health I mean] don't think it's real in adults either. They keep trotting out the line that the REGAIN trial proves LC goes away with exercise and 'behavioural support'.

Government by magical thinking.

Ref 7 is: https://pubmed.ncbi.nlm.nih.gov/39337079/ A Pilot Study on the Effects of Exercise Training on Cardiorespiratory Performance, Quality of Life, and Immunologic Variables in Long COVID

Really good letter @Robert 1973 Andrew Millar: "Chris Ponting says that medical misogyny has held back research in myalgic encephalomyelitis (News, Aug 8), but appropriate scepticism of scantily evidenced claims may also have contributed." Funny how appropriate scepticism of scantily...

Definitely, if it's a well-defined cohort of ME-type Long Covid rather than the 'anything-that-affects-you-after-Covid-that-doesn't-have-another-explanation' definition of LC.

The LLM isn't actually detecting any real hype, it's just generating some text about 'hype' because similar text strings are often found in the sources that it's been trained to mimic.

My guess is they prepared a media response strategy based on the assumption that genetic linkages to depression and anxiety would be found. Without that, they have to fall back on pretending the whole thing is insignificant.

The dogs bark, but the caravan moves on.

Tessa Munt MP on Channel 4 news making a strong point about the inadequacy of the Delivery Plan & that we need real action now from Wes Streeting and Ashley Dalton.

Thanks for this - I've just got round to signing up.

I've just stopped using it* too, for pretty much the same reasons (and I disliked how it kept pushing a certain interpretation of HRV and 'coherent breathing' that wasn't supported by its own results). I did find it useful initially for symptom tracking and showing me how much exertion was...

Ironically, the level of general ignorance and hostility towards pwME and pwLC in the NHS in general will make the specialist services look better in contrast. The bare minimum feels like generosity when elsewhere you've only been met with a kick and a spit.

Hilda Bastian has posted this: https://mastodon.online/@hildabast/114914005296356347

Hear, hear.

In the Delivery Plan under the header 'Stimulating further research into ME/CFS' Do we know anything about when this is happening & who's involved?

Not even the worst thing about that, but "MS/CFS"?? FFS.

It would be interesting to know how they were selected.