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Just had an exhausting but encouraging phone call with the GP leading the Long Covid service at GDoc (Gloucestershire's GP provider org). Encouraging because he talked knowledgeably about different areas of biomedical research, he sounded quite passionate about trying to find out more about the...

because they've been trained to think that that's how patients think?

The controls had also had Covid, though?

https://innovationlibrarynenc.org.uk/result/elaros-tracking-long-covid-app/ Under 'Plans for the Future / spread and adoption':

So the treatment group got not only exercise training but lots of personal contact with HCPs (and "behavioural support"); did the control group get anything to match that?

= no authorisation for school absence, and if your parents keep you off school when you're exhausted they get reported to social services.

from the conclusion: absolutely clueless

Successful de-escalations often involve giving one party a way to withdraw from their position without losing face. Maybe, as and when new evidence arrives, the BPS advocates will feel readier to cede some influence if they can say "oh yes, your 'neural hypervigilance' is what we were driving at...

More so looking at the numbers in the referenced paper (in which 'Long Covid' is defined as 'still experiencing respiratory symptoms and/or increased fatigue at least 28 days post diagnosis'): https://pmc.ncbi.nlm.nih.gov/articles/PMC8906430/ Edited to add: 40% of the participants had been...

Gamma Interferon Regulated Disorder of Excitatory Receptors Syndrome. To be treated by drinking Irn-Bru.

Binita Kane seems to sign up to an awful lot of unsubstantiated ideas, which is a problem since she's also a go-to quote source for various journalists. Contributes to the impression in some quarters that Long Covid is basically imaginary.

The insinuation is that both pwME and trans people are mentally deranged, and that those who recover/detransition and return to healthy normality then face being "silenced" by activists who supposedly want to prevent other sufferers from realising that recovery is possible.

This marketing line has been used a couple of times now by govt spokespeople, it's obviously the party line. I'm trying to compose an email to the Long Covid APPG group pointing out the correction in the BMJ about the results only being applicable to hospitalised patients. Hoping maybe some MP...

It's ridiculous. This paragraph in particular: How anyone can think these three sentences make sense together in any context, let alone in relation to the findings of this 'study'...

I don't think it even tells us that. I think it just tells us that using questionnaire scores as a primary outcome measure is a waste of everyone's time. Their only vaguely objective measure is the EEG, and that only showed significant changes in the sham group. LOL.

yet someone felt the need to publish this at this stage?

Respect! I once made nettle soup for two and that was trouble enough.

I know somebody who swears she was cured of Long Covid overnight by drinking nettle tea, so maybe that's the charm after all! (Except I also drank the nettle tea which she was kind enough to give me, and it did not cure me :rofl: )

It's a fluctuating and unpredictable illness from which a percentage of people recover with no intervention at all. Anecdotes of recovery attributed to any one particular method deserve to be afforded just as much belief as anecdotes of recovery by any other method (graded exercise, experimental...

It's the same kind of style you see from any Youtube crank ranting about how the earth is flat or vaccines cause autism or whatever. But because he has some past professional eminence he gets treated as a non-crank.