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This is really good, I wish I’d seen it before my tribunal. I have never had an assessment though.

Yes, I bet the BPS would think themselves superior yet they’re basically the same. Believe you are better and you are better.

Don’t certain religions cure you, if you pay, sorry pray hard enough? Is that the same as what the nice neurologist is proposing?

They told me the same thing. However they apparently have a legal duty to carry out the assessment. You would need to push for it, it seems their first line of defence is to put you off. edit I see others have said this!

As rightly pointed out, any stimulant will erm, stimulate you. Interested to see if they repeat the study but with amphetamines:p

I did 3 years without caffeine. It didn’t help. I now take 100mg when I wake up and it’s really helped me. Just my experience but I don’t think it needs to be vilified if it doesn’t cause you harm.

Unpopular opinion but I found Mr Moseley very smug and annoying in his tv programmes. Whilst I’d never wish any bad fortune on him, I do think he may have thought he should take a long walk home on his holiday “because exercise is good” sadly he never made it. Taking a taxi may well have...

I do think you’d have to ask those who say it what exactly they mean. Not being pedantic - you’d have to ask them and I think they would just come out with something off the top of their head. As you say it’s “accepted” and littered throughout research. Is it just a lazy way of saying stress...

Not quite the same thing but ME/CFS skeptic did a piece on “boom or bust” research, you may find interesting https://mecfsskeptic.com/boom-and-bust-another-me-cfs-myth/

I believe it’s “fight, flight, freeze or fawn’ it’s in reaction to an aggressor (like a bear) I don’t have any sources I just find it unusual how it’s morphed into an either/or fight/flight.

I am looking around social media and there’s an unsurprising amount of campaigning and organising going 9n, not least several legal challenges to the green paper changes, and FOI requests for the data which proves how many people will lose out/what disorders they have etc. I know something was...

Declining? Sensory Overload Revenge?

I always go on about this, but I thing the fatigue/tired/pacing “do 50% less” energy envelope type of language makes it easy for a non-ME person to start from their own viewpoint. They imagine themselves as tired/doing pacing etc. They need to start from a point of pain and inability, not “what...

It’s not “enough” of an explanation but it’s a start if you’re discussing with a generic non-ME type who thinks you can “just try” a bit of x y z. How much of their day can they achieve spending most of it lying down in silence? They take for granted being sat up or standing, let alone seeing...

If I’m not lying down in silence, I’m exerting.

Yes - we don’t have any agency, it’s not us doing something wrong, it’s our only option to survive!

I do think it’ might belong to Schrödinger, as you don’t know for sure what is in this envelope until you open it. The energy only exists as an unknown until you access it :)

Are we all behind changing boom-bust to something else? I think it’s been slowly changing to push-crash. I think it’s been discussed a lot. Boom and bust is business language and it’s implying good times and fast living followed by destitution. It also has an air of hubris.

Not sure, not many details apart from her name was Sharon and it was also on Facebook. Another “TPN is too dangerous” situation.

I know none of the pip stuff makes sense, but in theory I can lose my 2s on ADL’s but still have my mobility? So you can only walk 1-20m but you’re fine walking about your home having a shower and putting clothes on to do your cooking?