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In fairness to AfME Sonia did say recently that all materials will be reviewed and they aren’t going to be written by Gladwell? After the care plan disaster.

Anybody with an unknown, un researched illness can be rehabilitated via regular means.

Not many responses yet, will be interested to see the final output

That’s two questions in one on the survey proper. Very poor way to phrase a survey question.

Also laugh out loud lol from me. Although, if there is somewhere doing care and management plans, this might show us where. I assume they are done in the following parts of the UK- Narnia The visiting world at the top of the Faraway Tree Never Never Land Appointments are at a billionty past...

Excellent Trish! I thought we are all type A Alpha overdoing perfectionists. The worst thing you can do with people like that is say “don’t overdo it, just do a little bit” /sarcasm Pacing up always reminds me of why you’re not allowed to do weight watchers etc if you have an eating disorder...

Exactly, that’s why we don’t have enough useful experienced doctors.

Are there expert doctors who can make sensible decisions on use of resources though? Seems like everything is a paint-by-numbers “pathway” these days.

Let’s face it, they don’t think they should have to engage with the membership. And they don’t want to.

It does if you have to balance the books

He won’t reform the NHS into an efficient and effective institution in 5 years with this global economy. Also isn’t he Sir Starmer?

It’s not in any powerful institution’s interests to actually resolve the problem. That’s why people just make these attempts so it looks like they are doing something. See also - benefits, education etc. Hope that helps!

I’d just send it to the Charities Commission. And those twitter people Nic? Peter?

@Peter Trewhitt And having an unsolicited upsetting reply

Yes his linguistic acrobatics are very agile, he must be up and out of bed early each day, limbering up the dictionary! The “not entitled” excuse was a good effort, but ultimately still wrong.

That sounds lovely. So you just keep logging on every day in the hope that your question is added and some sub-par whitewash answer accompanies it.

These matters would be great for @ME/CFS Skeptic to cover (if not done so already)

Nah, he wouldn’t hack it! Tubby Isaac’s would have him for dinner, and if you sell things you need to be polite otherwise people don’t come back! I think he might need to look at specialist services - those Japanese cafes where the staff insult you?

“Delusions of grandeur” Neil? He’s not a bit circumspect nor respectful.

The post by CS clearly stated that CS had taken part in similar trials, CS is the authority on all things ME research