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I’m not eating it! Apparently, the rice I call a “good-for-nothing See You Next Tuesday” will look visibly degraded, as compared to my special-wecial true love rice.

I’m no scientist but I’m thinking of having a go at this rice theory. So I just make some rice and I guess leave two bowls in about the same place? But one I am going to quietly verbally abuse. And the other, I will whisper sweet nothings to. I wonder why people in the olden days didn’t just...

I’d like to see it as an app or online game. Where people get little criticisms of what they’re doing (why did you throw a 5? You should have thrown a different number!) bubbling up the side.

No idea but he was certainly holding court there for a while. I think after he went, so did the CFS service (which is perhaps a good thing)

I saw Prof White at Barts 2007

So what are the challenges to overcome in the situation? TPN is being given at Conquest Hospital. Conquest Hospital seem to be saying they can’t let her stay much longer. Conquest Hospital and the local Health trust don’t do TPN “at home”. The resolution she wants is TPN at home. What is...

Is there no decent evidence behind the Workwell Foundation basic anaerobic threshold theory (which Visible is based on) increased heart rate would be easy to demonstrate, we just need the studies which link it to PEM/relapse...

It seems St Marks are thought to have a strong psychiatric approach.

Surely there is an appropriate hospital where TPN can be instigated which is less than 100 miles away? I haven’t read back but I think there was more to St Mark’s than just the TPN

PACE was evidence based, it’s just that the evidence was it’s based on was trash.

Fortunately inews isn’t exactly a big hitter

I’m praying that Decode ME comes up with something which will stymie these PROMS. I really do think there should be a campaign against using them. PROMS HARMS

My neck isn’t big enough, and I’m not a man over 50 so I didn’t meet the criteria.

I was finally diagnosed with Sleep Apnoea recently. I’ve gone from severe to moderate since I got cpap. It took me years to persuade a GP to refer me. Apparently loud snoring, stopping breathing for up to a minute at a time and chocking and struggling to start breathing repeatedly “doesn’t...

Good idea. I’m a big fan of Visible. Even if you could “borrow” a communal one for a few weeks you would learn a few things from it. And almost more importantly, so do the people you show it to.

I feel like the invisible electric shock fence needs adopting as a regular description. Maybe a few memes.

I’m just taking every opportunity to be facetious about Sarah Tyson claiming the NHS and Wearables are like oil and water and will never mix. *apart from micellar water which is a mix of oil and water, making this an ideal analogy.

Combining “us” with any other group is ridiculous, the NICE guideline is clear that we shouldn’t be offered a general programme open to other people. Now people will be getting “breathing exercise through singing” (not me when I can’t speak) and home golf (when I can’t sit up) but I just ignore...

It described very well the “mental load” always hanging over us, doesn’t it? The invisible line of the electric fence, where is it just now? It was over there, before -ouch that’s an electric shock- I guess it’s now much closer than I thought.