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I’m not in this discussion, I was on the Monbiot thread. If you’re looking at the Maeve case, you can re-read her thread as to what was said at the inquest, and the extensive discussions (which some here took part in) don’t tag me in here, I’m absolutely beyond my limit with being tagged...

At the risk of thread crossover, George Monbiot tweeted about whether a Public enquiry is needed. I know Sarah Boothby was looking at contesting the inquest. How viable might legal routes be, for Maeve and for pwME do we think?

Wow really? I wonder…

Can we see the grant application? kudos for Sarah for explaining further. Unfortunately I think there’s an echo chamber, and “advice” may be listened to, but not heard. Also the tail wagging the dog seems to have been revealed - building stats for commissioning services. Gotta show...

what I do is a flow chart. Start with “feeding” and draw lines down for each type (NG, NJ PEG PEJ TPN) at the end of the line give the reason “given at inquest” why it wasn’t done OR that is wasn’t even mentioned at inquest, and “assumed” reason. From there you do another line with your argument...

I’m bringing it back on topic quoting this important tweet by George Monbiot asking whether there needs to be a Public Enquiry

This really is off topic, we have all of this info on the Maeve inquest thread which is probably where this should be. I think my point is quite straightforward- the reasons given at inquest by the medics were that the infection risks and risk to the stomach were too great to use any/all other...

I distinctly remember the “non-working stomach/use it or lose it forever” debate, and I didn’t think that referred to PEG (or NJ or PEJ) If the PEG can’t be done due to hygiene (assume the same issues with PEJ and NJ) and the TPN can’t be done due to stomach becoming useless, what else is...

It was discussed at length in the inquest. Can’t consider a PEG due to lack of washing, can’t consider TPN the stomach would stop working, I don’t recall but it’s there in the reporting, Dr Roy seemed very strident.

Irregardless of capacity they were unwilling to try any alternatives, really it’s a moot point. I assume, and I might be wrong, that the original poster who brought up sectioning was assuming it would lead to some kind of feeding via TPN (in the vein) but actually the Drs had (after the NG...

I’ve got a “zinger” for unsolicited wellness advice “oh really? No that’s not a study I’ve heard of, do you know who carried it out or published it? Oh it’s on the internet? Have a look for it and send me the link so I can share it!”

BIB is the nub of it, in my opinion

Based on what was said at the inquiry we do

I think it’s a combination of that, mixed with a misunderstanding that ME/CFS would lead to death in any case. I really think after reading about MND/ALS these Drs thought the ME would cause the body to shut down, and stop functioning.

This is the point I was trying to make. I think wording it as “what would have happened to Maeve then” was inappropriate. The doctors were clear that they were not going to try anything other than the NG tube, so what difference would a section make? It’s really a rhetorical question as they...

All the more reason you’d expect Sarah to explain in succinctly in plain language. Rather than a list of expert jargon and a whole sentence explaining how they did something not here, but on a different project? I think PEM is separated because it can’t be “fixed”

What that?

It’s all part of a pattern of very defensive reactions though. Look at the tone without that part!

I don’t think it’s anything “worse” than setting up a framework which will generate positive outcomes for NHS commissioners. But it could be more sinister I suppose. It comes across as “the tail wagging the dog” The fact that nobody can give a concise, relevant, meaningful and substantial...

Wow. I’ve said before, there is a legal recourse somewhere in this case, and I suspect it would require lots of money (crowdjustice funiding perhaps) and a very specialised lawyer, but I personally would support Sarah if she found a way forward. Although I’m not wealthy so that’s no great...