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  1. Simbindi

    Intelligence is negatively associated with the number of functional somatic symptoms, 2009, Kingma et al

    Sci-hub link: https://sci-hub.tw/https://jech.bmj.com/content/63/11/900.full
  2. Simbindi

    The Times: Chronic fatigue syndrome: ME families accused of child abuse

    The Times' journalist did choose to tell the stories of two sets of parents that the paper's readership is very likely to empathise with (i.e. working professionals), so I see this as them taking a sympathetic approach to PWME (and carers/parents).
  3. Simbindi

    Coronavirus - worldwide spread and control

    A new 'tool' is being developed to help clinicians access individual patient risk to Covid-19: Full details here: https://www.phc.ox.ac.uk/research/primary-care-epidemiology/covid-19-risk-tool It is notable that they don't appear to be considering a person's risk of suffering long term...
  4. Simbindi

    Covid19 - Shielding and self-isolating for vulnerable people - policies and issues

    More details of the new model being developed can be found here: https://www.phc.ox.ac.uk/news/oxford-leads-development-of-risk-prediction-model-for-smarter-covid-19-shielding-advice
  5. Simbindi

    The Times view on taking myalgic encephalomyelitis seriously: Chronic Condition

    It's probably worth being aware that The Times are launching their own radio station at the end of this month (and I think they are sponsors of the Talk Radio station): https://radiotoday.co.uk/2020/06/launch-date-and-schedule-revealed-for-times-radio/ If the M.E. community don't get in there...
  6. Simbindi

    Covid19 - Shielding and self-isolating for vulnerable people - policies and issues

    GPs will be asked to rewrite Covid-19 shielding list using new risk score 22 June 2020 By Sofia Lind http://www.pulsetoday.co.uk/clinical/clinical-specialties/respiratory-/gps-will-be-asked-to-rewrite-covid-19-shielding-list-using-new-risk-score/20041048.article Since the most vulnerable...
  7. Simbindi

    Coronavirus - worldwide spread and control

    Even worse when you consider the following horrifying statistics: https://www.disabilityrightsuk.org/news/2020/june/disabled-women-over-11-times-more-likely-die-coronavirus
  8. Simbindi

    Covid19 - Shielding and self-isolating for vulnerable people - policies and issues

    How many people are there in the average Tescos at any one time? How many pass through the store in one hour? It's impossible to socially distance in these sort of places and with the general public becoming more and more lax with this, things are going to get worse for previously 'shielded'...
  9. Simbindi

    Covid19 - Shielding and self-isolating for vulnerable people - policies and issues

    The 'shielding' is ending at the end of July (the government says it is being 'paused' but also they will provide new clinical guidelines so that less people have to shield if the programme is reinstated)...
  10. Simbindi

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Interesting. I posted comments to DEFRA about the poor nutritional value of the free food parcel contents in response to their online survey early on in the programme.
  11. Simbindi

    UK - Resources for help getting food during quarantine and other supermarket related problems

    This is a link for people who prefer meat that comes from farms with the highest husbandry standards. Coombe Farm in Somerset offers a range of organic meats, along with lots of other items including bones for stock, bone broth, organic pies, organic store cupboard items, some organic ready...
  12. Simbindi

    UK: Physios for ME

    Yet this is taught as if there is actual evidence for it. The relevant part of the IAPT therapist curriculum for CFS/ME states the following: https://www.hee.nhs.uk/sites/default/files/documents/CBT LTC MUS curriculum.pdf The 'theoretical understanding' underlying the general MUS model that...
  13. Simbindi

    The biology of coronavirus COVID-19 - including research and treatments

    My eyes go like that when I'm in severe PEM - it's been like that for almost 30 years since I first got the symptoms of M.E. Edit: I have anti-histamine eye drops on permanent prescription for this problem. They help a little but my eyes get better after a few days in bed, so it's directly...
  14. Simbindi

    Covid19 - Shielding and self-isolating for vulnerable people - policies and issues

    If they really cared about their vulnerable customers there is a simple way they could do this via their website (if they paid for the additional service). I recently bought a set of knives and the company directed me to this site (after checkout with a bespoke link for me to complete)...
  15. Simbindi

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Unfortunately Abel and Cole don't deliver in my area, they seem to be London based and serve the South of the country (not the South West). Riverford milk is lovely, organic and fresh from the Devon farm, but not from Jersey cows. I think Riverford are trying to increase their range again, but...
  16. Simbindi

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Everfield Organics deliver nationwide, next day with DPD. They now have a pretty good range of produce, including dairy, bread, meats, flours and store cupboard items: https://www.eversfieldorganic.co.uk/ I may put in an order with them so that I am considered an 'existing customer' as I think...
  17. Simbindi

    Covid19 - Shielding and self-isolating for vulnerable people - policies and issues

    Interesting reading one of the comments to the above article. One lady's healthy husband had been put on the shielding list whereas she had been left off, despite meeting the criteria. This is what happened to me with my daughter being put on the list instead of me. I think they must have been...
  18. Simbindi

    Covid19 - Shielding and self-isolating for vulnerable people - policies and issues

    Following a link from the first HSJ article, I read the shocking information below. I think this may be relevant to members on the forum who have been left off the shielding list despite having other severe conditions.
  19. Simbindi

    Covid19 - Shielding and self-isolating for vulnerable people - policies and issues

    It's not been officially announced. I was just looking up what the state of play is when I came across a Sun article stating the above and decided to see where they got the information from. The HSJ is somewhat more reliable as a source than the Sun and it's interesting to read the comments from...
  20. Simbindi

    Covid19 - Shielding and self-isolating for vulnerable people - policies and issues

    https://www.hsj.co.uk/news/exclusive-shielding-programme-for-two-million-high-risk-patients-to-be-dropped/7027857.article Registration required to access the article, but I quoted it in full as it's very basic information at the moment.
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