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  1. Simbindi

    Anyone has a stair lift at home ? (Moving, part II)

    That's so useful to know - it will help my argument for a through floor lift if I can't find a bungalow I'd be happy to exchange with. My district council is both my landlord and the administrator of the LA's Disabled Facilities Grants, so they are always trying to cut their costs (even though...
  2. Simbindi

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    I'm not sure whether this information has been reviewed by those members here who are on the NICE committee, but I have attached the CFS/ME guidance given in the DWP 'a-z of medical conditions' that was (possibly still is) used for assessing DLA. Needless to say, it gives the completely wrong...
  3. Simbindi

    Work is good for health: a thread to post and discuss the evidence for this statement

    It's not specific to the UK, it's just that's where I'm from, so that's what I know about. Members from other countries may also have to face similar 'work is good for you' government and health insurance agendas, so they are welcome to add to this thread. In fact, it would be very interesting...
  4. Simbindi

    United Kingdom: Getting a Wheelchair on the NHS

    Yes, where you live makes a difference to your chances of getting a home assessment: https://www.benefitsandwork.co.uk/news/3966-pip-claimants-who-are-3-times-more-likely-to-get-a-home-assessment
  5. Simbindi

    Work is good for health: a thread to post and discuss the evidence for this statement

    This thread is for discussing the general concept of the 'work is good for health' promotion, it is not intended to be specific to M.E. or the Pace Trial evidence - there may be a better thread to ask this question (although I understand why you would be concerned). Edit: I realise my original...
  6. Simbindi

    Work is good for health: a thread to post and discuss the evidence for this statement

    NICE apparently has produced guidance on 'Workplace health: long-term sickness absence and incapacity to work': https://www.nice.org.uk/guidance/ph19 How NICE selected and used evidence to develop thier guidance is explained in the following article...
  7. Simbindi

    Work is good for health: a thread to post and discuss the evidence for this statement

    The role Local Authorities in England are expected to play in this agenda: https://www.local.gov.uk/sites/default/files/documents/health-work-and-health-re-904.pdf At least this one talks about people needing 'high quality' and 'stable, long term' work (although the evidence used in it is...
  8. Simbindi

    Work is good for health: a thread to post and discuss the evidence for this statement

    A document explaining how the benign UK government is helping us 'work our way to better mental health': https://www.gov.uk/government/publications/working-our-way-to-better-mental-health-a-framework-for-action Edit: with an update on the evidence reviewed...
  9. Simbindi

    Work is good for health: a thread to post and discuss the evidence for this statement

    A UK government led review - 'Quantifying the effectiveness of interventions for people with common health conditions in enabling them to stay in or return to work: A rapid evidence assessment'...
  10. Simbindi

    Work is good for health: a thread to post and discuss the evidence for this statement

    And the 'mirror' survey on the public's attitudes towards health and work: https://www.gov.uk/government/publications/attitudes-to-health-and-work-amongst-the-working-age-population-rr763
  11. Simbindi

    Work is good for health: a thread to post and discuss the evidence for this statement

    A UK government survey on GPs attitudes towards patients' health and work (2011): https://www.gov.uk/government/publications/general-practitioners-attitudes-towards-patients-health-and-work-rr733
  12. Simbindi

    United Kingdom: Getting a Wheelchair on the NHS

    Maybe that was Capita, rather than the DWP. I do remember reading some DWP guidance on when to provide a home assessment so I'll try searching for that when I have some time and energy.
  13. Simbindi

    Work is good for health: a thread to post and discuss the evidence for this statement

    Here is the UK government's approach to 'rehabilitation' and 'management' of 'common health conditions': https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/208968/hwwb-concepts-of-rehabilitation.pdf
  14. Simbindi

    Work is good for health: a thread to post and discuss the evidence for this statement

    I thought it might be good to have a thread where members can post and discuss the 'evidence' that governments and health insurers use to promote the idea that 'work is good for health'. This thread is for discussing the evidence for the general concept, rather than evidence specifically...
  15. Simbindi

    Work Rehabilitation and Medical Retirement for [ME/CFS] Patients. A Review and Appraisal of Diagnostic Strategies, 2019, Vink et al

    I've attached the relevant appendices from the DWP ESA/UC manual (the complete manual is over 250 pages). I haven't finished my 'close read' of the manual, but so far it appears that the DWP consider 'substantial risk of harm' can only be caused by a mental health condition, although the DWP...
  16. Simbindi

    Work Rehabilitation and Medical Retirement for [ME/CFS] Patients. A Review and Appraisal of Diagnostic Strategies, 2019, Vink et al

    I put a link to this in the relevant NICE guideline 'call for evidence' thread. I am not in a position to submit evidence myself, but I am sure a committee member will pick up on this (if no one else formally sumbits this).
  17. Simbindi

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    NICE committee members please take a look at the following thread (if you haven't already): https://www.s4me.info/threads/work-rehabilitation-and-medical-retirement-for-me-cfs-patients-a-review-and-appraisal-of-diagnostic-strategies-2019-vink-et-al.11398/#post-203183
  18. Simbindi

    Work Rehabilitation and Medical Retirement for [ME/CFS] Patients. A Review and Appraisal of Diagnostic Strategies, 2019, Vink et al

    I haven't yet read through the whole paper, but a very quick glance over it makes me hope this article will be given serious consideration by the NICE review group. To me, NICE should consider the demands placed on a working age PWME as being part of their healthcare management, and take into...
  19. Simbindi

    Mind the Hype: A Critical Evaluation and Prescriptive Agenda for Research on Mindfulness and Meditation, (October 10, 2017) Van Dam, et al.

    It does look like an article worth reading fully, when able. In the meantime, it's available in an Easy Read version: The Ladybird Book of Mindfulness
  20. Simbindi

    United Kingdom: Getting a Wheelchair on the NHS

    The first time I was in the process of diagnosis, the second time when ATOS tried it on, they told me I had to get my GP to write, which she did. However, she was confused about why she needed to, she doesn't understand autism, she did it for me because of the journey time and my physical...
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