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  1. Simbindi

    Obtaining work-related disability benefits in the UK: ESA and UC general guidance and advice

    Here is the link to further information explaining the changes in Work Capability reassessments (2017): https://www.disabilityrightsuk.org/news/2017/october/guidance-work-capability-assessment-reassessment-published The main link contains further links to PDFs of the relevant DWP guidance.
  2. Simbindi

    Obtaining work-related disability benefits in the UK: ESA and UC general guidance and advice

    Here is the link to the latest version of the 'assessor manual' for ESA and UC: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/777221/wca-handbook.pdf Edit: I need to put a warning on reading this. I have just reviewed the appendices 6-7 and my...
  3. Simbindi

    United Kingdom: Getting a Wheelchair on the NHS

    That's why I put a full description of my house and garden in writing on my PIP form (I had read the DWP assessors manual so had preempted the assumptions that HPs make). It's terrible, but it is really like being the pawn in a strategy game and you have to think ahead about the questions they...
  4. Simbindi

    United Kingdom: Getting a Wheelchair on the NHS

    I'm going to re-read all the DWP PIP and ESA assessor's manuals as part of the prep for developing the (UK) benefits threads I've started (they are hundreds of pages long - it will take me some time). But from memory, there was nothing in them stating or implying that a claimant's wheelchair...
  5. Simbindi

    United Kingdom: Getting a Wheelchair on the NHS

    I also specified how far to the bottom of the garden, I had read that they assume if you can go out in your garden you can walk 100 metres! Edit: I'm going to cover about the need to stipulate all these types of things in your original written application form when I develop the ESA/UC and...
  6. Simbindi

    United Kingdom: Getting a Wheelchair on the NHS

    I'm pretty sure I remember writing a lot on my PIP application about why I don't have a wheelchair: reasons included that I have no one available to push a manual one, my house is not suitable for using one inside (I wrote I can never be more than 2.5 metres from at least one wall due the...
  7. Simbindi

    Anyone has a stair lift at home ? (Moving, part II)

    I live in a 2-storey semi-detached council house and the stairs are getting increasingly difficult for me to manage without extreme pain, even without the energy problems. My house is rural which is perfect for my sensory and social problems. However, it is a rarity for social housing - I was...
  8. Simbindi

    Viewpoint: “It’s All in Your Head”—Medicine’s Silent Epidemic

    It's safe. If searching for or downloading a new paper (one that isn't in the Sci-hub library) you need to enter the word in the box each time.
  9. Simbindi

    Obtaining work-related disability benefits in the UK: ESA and UC general guidance and advice

    Members can put links on these public threads to any relevant threads in the membes only area, that is, those member-only threads where people have been discussing their personal experiences in relation to claiming these benefits. Non-members will not be able to access or read the posts, but...
  10. Simbindi

    Obtaining work-related disability benefits in the UK: ESA and UC general guidance and advice

    I know this, but I was explaining why I was seperating in and out of work benefits. Edit: Once these threads have actually 'taken shape' I may ask members to go back and delete some of these 'question' posts, just to keep the information threads easy to read. Sorry, it will take me a few weeks...
  11. Simbindi

    MS research versus ME/CFS research

    It's interesting to see that attention deficit gets so much funding. I've never seen anyone privately fundraising for research into it, but I do know that it seems to fascinate researchers and psychiatrists! Edit: And a high proportion of those who suffer from it do not want to be medicated!
  12. Simbindi

    MS research versus ME/CFS research

    People with MS and Parkinsons are referred to specialists and have their symptoms and disease progression continually monitored by various healthcare professionals. They get lots of specialist nursing support and advice too. PWME are abandoned by their doctors, even in primary care, left to rot...
  13. Simbindi

    MS research versus ME/CFS research

    People are generally not interested in supporting research into a medical condition until they have experienced it, or see (and believe) how it affects a close family member or friend. Many people with MS and Parkinsons whose onset starts in their 20's are still able to get a 20-30 year career...
  14. Simbindi

    Obtaining work-related disability benefits in the UK: ESA and UC general guidance and advice

    Also, it will take me time to build up the information on the threads, obviously other members should feel free to add their own posts too. But it would be great if the threads can keep to general information, guidance and advice, so that the reader can easily locate the information they are...
  15. Simbindi

    Obtaining work-related disability benefits in the UK: ESA and UC general guidance and advice

    Yes, I am going to start a similar thread soon for PIP/DLA. ESA/UC is assessed differently to PIP/DLA and this is reflected in the various legislation. I plan to explain this and how to approach the different benefit assessments. They each need their own thread to do them justice and keep the...
  16. Simbindi

    MS research versus ME/CFS research

    However, it is not that uncommon to get MS whilst relatively young. My daughter's best friend was diagnosed with it in her final year of uni. She has gone on to have a successful legal career and now a young baby (while still in her 20's). So these working adult sufferers are likely to be...
  17. Simbindi

    How ME/CFS Progresses: A Framework for Research and the Prevention, Treatment, and Rehabilitation in ME/CFS Nacul et al 2019

    But not possible if you have caring or parenting demands (for example). Additionally, the 'final straw' may be an acute infection or other disease, an accident etc.
  18. Simbindi

    Obtaining work-related disability benefits in the UK: ESA and UC general guidance and advice

    Other members have mentioned Fightback4justice as being very useful. I don't know much about this organisation, but hopefully members who do will post more information about them on this thread.
  19. Simbindi

    Obtaining work-related disability benefits in the UK: ESA and UC general guidance and advice

    This organisation provides some of the best guidance for ESA and UC (as well as PIP and DLA). They have been mentioned and recommended in this forum across many threads and posts, but I'm putting a link here too so that it can be readily seen by members needing working age benefit advice...
  20. Simbindi

    Obtaining work-related disability benefits in the UK: ESA and UC general guidance and advice

    This is the link to where you can find some information about the training the Health Care Professional who will be assessing you has received: https://www.disabilityrightsuk.org/news/2014/september/wca-assessors-how-much-training
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