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Vitamin D and ME, should pwME have high vitamin D? I've been told ME/CFS patients should have vitamin D levels >100 nmol/L. Does anyone know where this could originate from? The highest vitamin D levels recommended in any guideline I am familiar with is >75 nmol/L, and I am not aware of...

There was an interview/story with Helland from the Norwegian Competence Center, where she said something along the lines of "Some people only hear psychosocial when we talk about the biospychosocial approach". I could have given her the benefit of the doubt that she also included healthcare...

Wow :confused: :banghead:

Right.

That happens, but dietary intake/absorption/GI troubles should be checked before making statements about potential pathophysiology.

A very simple explanation could be a lower intake of (iron rich) food due to being ill and eating less. How was this not even mentioned?

In one of my clinical courses, we worked on a case where the patient had serious liver disease. Turned out he had had "weird" bloodwork for years, but it wasn't until it became serious it was followed up on. You know, it was probably their normal despite coming back with vague system over and...

In Norway if you are hospitalised for a psychiatric condition, you will lose a large chunk of your disability after a certain amount of time. This does not happen if you're hospitalised for a physical illness.

And nutrition.

Is this missing a link?

Agreed.

I probably should have written that the background material is just the same old same old, so no need to spend energy on it instead ;)

I you haven't read the lead up to this (Interview with Vegard Wyller in Khrono, and an editorial in Tidsskriftet for legeforeningen) I wouldn't recommend doing so. Good replies have been written to both texts though :)

Two people in the team have written an opinion piece on the ME debate, in defense of "ME activism" and notes that legitimate criticism is not the same as abuse. They talk about how important patient contributions have been in other areas of research such as HIV, and that it is a mistake to say...

They are now trying to recruit severe pwME by reaching out to their family/carers. I hope the severe patients in Norway will get to tell their stories :) https://www.s4me.info/threads/qualitative-study-in-norway-recruiting-participants.8588/

Posts on the research study "Tjenesten og MEg"/"The health service and ME" have been moved to Tjenesten og MEg | The health service and ME, Ongoing, Sintef FaFo.

Posts on the research study "Tjenesten og MEg"/"The health service and ME" have been moved to Tjenesten og MEg | The health service and ME

I also like the unintended "con" in the thread title :laugh: (moderator note - the title has now been edited to leave out the part of 'a cluster randomised control trial' that the character limit allowed)

There was a recent study in humans on vitamin D and muscle, unfortunately they used a high reference range for vitamin D that are commonly not used in practice (>75nmol/L, while typically this is >50nmol/L or lower). This meant that both the vitamin D supplement group and the control group had...

A number of posts discussing the evidence for orthostatic intolerance in ME/CFS and potential treatments have been moved from the Response to Michael Sharpe letter, Rowe, 2019 thread.