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  1. Midnattsol

    The course of the illness for ME patients in Norway, 2021, Schei and Angelsen

    Scholarships are not that common in Norway, all that would be needed is to find someone willing to supervise a student doing this (and present it as a possible project to a group of students).
  2. Midnattsol

    Explanation for excessive generalized edema?

    I only have it a bit now, previously I could gain ~4-5kg during a crash, which would then disappear. Now maybe two? I've been thinking it has reduced since my muscle mass has decreased (muscles can hold more water than fat), but I don't know. My mother had a friend when she was younger who had...
  3. Midnattsol

    Once-Weekly Semaglutide in Adults with Overweight or Obesity, 2021, Wilding et al

    Putting someone on a reduced calorie diet for over a year does sound like a recipe for becoming fed up with the "treatment". Especially if weight loss is slow, I would not be surprised if motivation to continue the lifestyle change dropped (follow-up every four weeks is pretty good in a clinical...
  4. Midnattsol

    Woman 'with ME' won world kickboxing championship

    Very similar to me. Although my cognitive issues have improved while my phyiscal capabilities has declined.
  5. Midnattsol

    The course of the illness for ME patients in Norway, 2021, Schei and Angelsen

    Am I the only one that finds it a bit hard to define time of onset? I might say a year, but I did not have a sudden onset or any type of illness that I just didn't recover from. It happened gradually, and it might have started before I really noticed it.
  6. Midnattsol

    News from Scandinavia

    I get really frustrated about the accusation towards the Norwegian ME Association, that they (and us members) are close minded, and that patients who are more open to other explanations have nowhere to go and are persecuted and not listened to.
  7. Midnattsol

    News from Scandinavia

    Are you saying you don't get filled with hope reading anecdotes? ;)
  8. Midnattsol

    News from Scandinavia

    A reply to this was posted today "Hvilke pasienter skal man lytte til i den polariserte ME debatten?" Google translate: "Which patients should be listened to in the polarized ME-debate?" Again it starts with the the straw-man argument that it's about those who believe the disease is purely...
  9. Midnattsol

    Using Heart rate monitoring to help with pacing.

    Discussion on the Heart Rate Monitor Factsheet by the Workwell Foundation can be found here: https://www.s4me.info/threads/heart-rate-monitor-factsheet-workwell-foundation.19443/
  10. Midnattsol

    USA: News from the Workwell Foundation.

    Moderator note: Posts discussing the Heart Rate Monitor Factsheet has been moved to a new thread here: https://www.s4me.info/threads/heart-rate-monitor-factsheet-workwell-foundation.19443/
  11. Midnattsol

    Heart Rate Monitor Factsheet - Workwell Foundation

    The most my rhr has changed during my period is 14. That eats up nearly all of my freedom if I were to follow this. With orthostatic intolerance I don't see this as realistic at all. And as others have mentioned, it's rather optimistic re PEM. As with others, if I have immediate symptoms that...
  12. Midnattsol

    Reduced endothelial function in ME/CFS - results from open-label cyclophosphamide intervention study Fluge & Mella 2021

    I guess, to me that is something that comes and goes. Endothelial dysfunction is also associated with metabolic syndrome, diabetes, cardiovascular disease ++. Oxidative stress can be a problem, and the metabolomics study a few years ago found higher levels of free heme (pro-oxidant) in the...
  13. Midnattsol

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    Vegard Wyller has written about this, but I can't remember if it was published in a norwegian journal in norwegian or if it was in english.
  14. Midnattsol

    The biology of coronavirus COVID-19 - including research and treatments

    Moderator note. To keep the discussion on vaccines and vaccinations in one place, a number of posts in this thread about vaccines have been moved to the thread "Covid-19 vaccinations".
  15. Midnattsol

    Covid-19 vaccines and vaccinations

    Moderator note. Some posts about vaccines from the "The biology of coronavirus COVID-19 - including research and treatments" thread have been moved to this thread, to keep the topic of vaccines and vaccinations in one place. The title of this thread has also been updated to reflect this.
  16. Midnattsol

    Effects of Post-Exertional Malaise on Markers of Arterial Stiffness in Individuals with ME/CFS, Bond et al, 2021

    Still being taught in physiology today. I get periods of air hunger without doing much exertion, it doesn't feel like the need to breathe hard like I did when I went on tough hikes or bike rides.
  17. Midnattsol

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    In the comment on nutriGRADE, none of the authors say they have any COI, even if they are members of the GRADE Working Group, while in the RR being part of the Cochrane Working Group is a conflict of interest. I guess there is a logic in there somewhere. I couldn't find a list of members or the...
  18. Midnattsol

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    Sorry I haven't read through all of the posts here, and I've only skimmed through the rapid response. It did make me think of nutriGRADE, which was developed by someone in the nutritional field to overcome the limitations of GRADE when applied to nutritional studies (lack of RCTs, blinding etc...
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