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  1. Peter T

    Identifying and Managing Suicidality in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Chu, Jason et al

    Personally I have had positive experiences of counselling and CBT, though both at times when my ME was in relative remission, and I was an active participant in the then therapy and personal growth culture before the onset on my ME in the 1980s. However with our current state of knowledge...
  2. Peter T

    Spotlight on Long Covid webinar series, The Royal Society of Medicine

    When I started working with adults with physical disability I was in my late twenties, and many of my patients were the same age as me, many were from a similar nondescript urban middle class background to me. It really struck me then how much I had taken for granted: teenage rebellion...
  3. Peter T

    Does Functional Somatic Symptoms Measurement Differ Across Sex and Age? Differential Item Functioning in Somatic Symptoms.., 2021, Acevedo-Mesa et al

    Well obviously the reason for supernaturally mediated murder lies in the behaviour of the victim so appropriate CBT is essential (Clairvoyant Behavioural Therapy). The satisfaction ratings by participating victims are out of this world. This has potential value for the victims of lots of other...
  4. Peter T

    Designing a questionnaire on ME/CFS onset

    @Kitty, @Invisible Woman and @Snow Leopard thank for these useful points. It is always much harder than I think to put something down on paper that is straight forward and unambiguous.
  5. Peter T

    Does Functional Somatic Symptoms Measurement Differ Across Sex and Age? Differential Item Functioning in Somatic Symptoms.., 2021, Acevedo-Mesa et al

    Are murders that cannot be attributed to a named human agent the consequence of diabolical interference? If the police can not find evidence for a murder having been committed by a named person the only logical conclusion is that the murder was not committed by a human, but by a malignant...
  6. Peter T

    United Kingdom: ME Research UK (MERUK) News

    What has happened to measurements of brain activity? When I was an undergraduate over forty years ago there was such optimism about what might be possible. I remember the excitement when one of my lecturers identified his ‘yummy, yummy, I see a banana cells’, that was a small group of neurones...
  7. Peter T

    Identifying and Managing Suicidality in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Chu, Jason et al

    We increasingly tend to have a cultural assumption that ‘talking is good’. But we do not know that this is always the case.
  8. Peter T

    Designing a questionnaire on ME/CFS onset

    Given this is about onset, I was trying to include information from those that appear to have had multiple onsets. This was not an attempt to access information on improvements and deteriorations, that are part of the cyclic nature of many people’s disease pattern, as this would enormously...
  9. Peter T

    Designing a questionnaire on ME/CFS onset

    Moved from this thread: Research papers on type of onset (infectious, gradual etc)? Not sure if this is useful but I have attempted to list what questions would need to be included in an survey of onset types, though obviously it is still open to problems of respondents misremembering or being...
  10. Peter T

    Research papers on type of onset (infectious, gradual etc)?

    It is certainly of interest getting a better handle on the factors associated with onset, and it may be that better studies/surveys will significantly advance our understanding, however it may be that there will always be grey areas. For example my onset was presumed to be associated with EBV...
  11. Peter T

    Identifying and Managing Suicidality in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Chu, Jason et al

    Would this be a useful research project, to provide people with ME good social worker, advocacy and carer support and see how this impacted their activity levels/types and quality of life?
  12. Peter T

    Identifying and Managing Suicidality in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Chu, Jason et al

    Yes, what happened to good old fashioned Rogerian non directive counselling? I guess it is not currently fashionable. Early on in my ME I saw a counsellor in this mould and found it a positive experience, though we have no research evidence of the value of this in relation to ME. It could be...
  13. Peter T

    US: COVID-19 Long Haulers Act (H.R. 2754) Has Been Introduced

    It is looking like the US is making really good progress. From a distance it is looking like the ME and Long Covid lobby groups main problems there are dealing with apathy and disinterest rather than wilful denial. Hopefully this progress in the US can only help for those countries where both...
  14. Peter T

    Identifying and Managing Suicidality in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Chu, Jason et al

    Though in theory I would agree with this, but not when those promoting and providing the counselling are the same people who are dismissing, deserting and gaslighting. Though I personally have had positive experiences of psychotherapy, only a cursory glance through patient forums indicates that...
  15. Peter T

    Identifying and Managing Suicidality in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Chu, Jason et al

    Personally I find the most common triggers of suicidal ideation relate to interacting with benefits agencies. No amount of psychological intervention aimed at me would impact this. The only solution is to create a fair, honest and reliable benefits system.
  16. Peter T

    Trudie Chalder, BPS and MUS proponent - presentations, interviews and news

    Sorry as someone else pointed out to me ( I had known, but then forgotten), that Prof Chalder is not a clinical psychologist but came through as a nurse ( see https://slam.nhs.uk/national-services/our-experts/trudie-chalder/?fbclid=IwAR1yVmtSSWcIabUsUwFe4HlBHcp0XOvWG64mbygB7l2e3dRPGtl5vwg3bxk )
  17. Peter T

    Trudie Chalder, BPS and MUS proponent - presentations, interviews and news

    At what point does such behaviour become criminal. I tried looking at the UK clinical psychologists professional body website but could not find anything on professional standards (https://acpuk.org.uk/ )
  18. Peter T

    The Pathogenesis of Long-Term Neuropsychiatric COVID-19 and the Role of Microglia, Mitochondria, and Persistent Neuroinflammation, 2021, Stefano et al

    Technically neuropsychology looks specifically at issues like cognitive function, the mechanics of perception, language production, taste, hunger, etc as distinct from mood or personality, though clinical psychologists may individually deal with both they are effectively very different...
  19. Peter T

    The Pathogenesis of Long-Term Neuropsychiatric COVID-19 and the Role of Microglia, Mitochondria, and Persistent Neuroinflammation, 2021, Stefano et al

    Is it just me having problems with the term ‘neuropsychiatric’ as opposed to ‘neuropsychological’? For me the former is suggesting more than just such as cognitive and/or sensory issues, rather straying in to the realm of mental health. Surely this should be the realm of the neurologist and the...
  20. Peter T

    Actimetry Studies

    I agree, in real life clinical studies the situation can be very complex, and although objective measures are infinitely preferable to subjective outcomes in situations were blinding is not possible, ultimately it may be impossible to avoid all ambiguity so convergent evidence from different...
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