Search results

7 Things People With ME (Chronic Fatigue Syndrome) Want You To Know Chronic fatigue syndrome, or myalgic encephalomyelitis (known as ME) is a long-term illness that affects more than 250,000 people in the UK, according to the ME Association. Despite the high numbers of sufferers – who are...

I'm a 40-year-old stay-at-home kid - and it isn't so bad - Diane Shipley At the start of the second semester of my sophomore year of college, I threw some clothes, books, and a packet of chocolate-chip cookies in a backpack, locked my room on campus, and took the train home, where I moved in...

I don't think these articles have been shared yet in the thread, so here goes: Discover Magazine: Scientists Are Closer to Developing a Chronic Fatigue Syndrome Blood Test STAT News: An experimental test may help confirm cases of chronic fatigue syndrome

Only the abstract is available for time being. Endometriosis as a Comorbid Condition in Chronic Fatigue Syndrome (CFS): Secondary Analysis of Data from a CFS Case-Control Study Conclusions. We found that more than a third of women with CFS reported endometriosis as a comorbid condition. The...

I't doesn't surprise me if patients improve during a stay there, but it does surprise me that dr. Harari towards the end in this video claims 66% get back to work, and that they have studies showing that. Does he mean 66% of ME-patients? I'd like to see that study and how they followed up the...

Interesting. Thanks for posting. They provide the same treatment for ME patients. I went to a seminar about ME organised by them where they claimed to achieve very good results. Left the seminar unconvinced. The experience from ME patients I've talked to who have been there has been divided. I...

Thank you. I didn't know that.

I'm finding the following sentence from the Discussion a bit odd: The cause of ME/CFS is unclear, although it is likely to be a heterogeneous disorder that covers different causes, pathologic processes, and is often accompanied by neuropsychiatric features.

Forskning.no a Norwegian news site about research had an article the other day about the HRA report supposedly clearing the PACE trial from all criticism (discussed in the general PACE thread here) . Today the university OsloMet has an article about MUS (medically unexplained symptoms) turning...

Agree. He is both a journalist and a medical doctor and has many followers from those professions. Usually he gets some support, but it's rather quiet now. I don't think any of his followers want to associate themselves with his aggression by liking and sharing. But I do hope they are reading...

She used to work in prof. Wyller's team before becoming the leader of the competence center for ME/CFS. There was recently a petition with over 7 000 signatures asking to remove the management at the competence center. The center also got a rather critical evaluation from the Norwegian...

IFLS has an article as well. They have 25 million Facebook followers.

Huh, good question. I think we'll just go for menopause for now, but I'm sure an exploration of perimenopause could be interesting as well.

Thanks for answering, @Trish It really is hard to remember how one was doing many years ago. But no changes in part time work sounds like quite a good indicator. IF a connection between ME and early menopause is confirmed, I wonder if the duration of the illness beforehand would have anything...

Please feel free to answer the poll. :thumbsup: As @Trish says, you won't share your name/nick by responding to the poll. ETA: Bah! A typo in the poll's question. :facepalm:"Fell" is supposed to be "feel". Hope people will get it

So sorry to hear that, @obeat .Thanks for answering.

Thank you for answering. I'm sorry to hear you got worse.

Yes. Great idea. I added them.

That's a good suggestion! How about: Did you feel any difference in ME symptoms during menopause? Yes, an improvement in ME symptoms Yes, a deterioration in ME symptoms No, there were no difference in ME symptoms