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  1. Kalliope

    Pain is associated with reduced quality of life and functional status in patients with ME/CFS, 2018, Strand et al

    A Norwegian blogger has written a blog post about this study today pointing out that the authors lowered the scores in HADS from 9-10 to 8-9. The reasons from the authors was "HAD's tendency to underestimate depression" and "because of patient's reported tendency to underreport anxiety". She...
  2. Kalliope

    #MEAction: Meet the scientist: Professor Anthony Komaroff

    Interview with prof. Komaroff by Dylan Murphy #MEAction: Professor Anthony Komaroff In your opinion, what needs to be done by public health authorities to bring about better health outcomes for people suffering from ME? One of the greatest causes of suffering among people with ME/CFS is that...
  3. Kalliope

    Member questions for Dr. Sadie Whittaker, new Chief Scientific Officer of Solve ME/CFS Initiative

    I was intrigued to hear about the symptom capture app from Solve in the recent interview with Lewellyn King. Is this aimed to be used in one country, or to use internationally?
  4. Kalliope

    ME/CFS Alert, Episode 106: Interview with Sadie Whittaker, Chief Scientific Officer, Solve ME/CFS Initiative

    Interesting interview. I wonder if the symptom capture app can be used internationally? I liked that you can add your own symptoms to monitor as well as the core symptoms.
  5. Kalliope

    News from Scandinavia

    And now a Lightning Process-coach has joined the debate Lightning Process er selvhjelp, ikke behandling google translation: Lightning Process is self-help, not treatment Experiences after the course have shown a wide range, from rapid recovery stories from prolonged bed rest, discussed in...
  6. Kalliope

    News from Scandinavia

    Nina E. Steinkopf has written a very good reply: Skylder på pasienten når forskningen feiler google translation: Blaming the patient when the research fails Clinical director at A-hus, Erik Borge Skei writes in Aftenposten that "pressure from patient groups means that one of our reputable...
  7. Kalliope

    News from Scandinavia

    The Norwegian ME Association, Rogaland County, has for a long time worked on a project on adapted teaching for pupils with ME. The project has resulted into a "Tool box" which will be presented at schools as a lecture for the staff. Participants will get a box afterwards with a booklet and a USB...
  8. Kalliope

    B-Lymphocyte Depletion in Patients With ME/cfs: A Randomized, Double-Blind, Placebo-Controlled Trial (2019) Fluge et al

    Dagens Medisin has an article today about RituxME and has interviewed Øystein Fluge. Dagens Medisin: Norsk studie: Legemiddel hadde ikke effekt på ME google translation: Norwegian study: Medication had no effect on ME Fluge says the results of the study show how important it is to do...
  9. Kalliope

    News from Scandinavia

    The Swedish paediatrician Mats Reimer recently stopped writing for a news site for medicine, Dagens Medicin, and started writing for another site, Dagens Samhälle. It appeared that one of the reasons he stopped writing for Dagens Medicin, was his controversial opinions on ME. He is pro a...
  10. Kalliope

    Update from Ron Davis April 2019 Interview with BenH

  11. Kalliope

    News from Scandinavia

    Interview with Karin Alvtegen. She is a famous Swedish crime fiction author who suffers from ME. She's been open about her experiences and recently publis Another interview with Karin Alvtegen. allas: Karin Alvtegen har ME - berättar om sjukdomen google translation: Karin Alvtegen has ME -...
  12. Kalliope

    News from Scandinavia

    Article from a local newspaper in Sweden about a mother and a father who are caring for their severely ill ME sick daughter. The article described well the severity of their situation and their desperate fight for help. Hallandsposten: De står maktlösa inför det fängelse som ME har skapat...
  13. Kalliope

    B-Lymphocyte Depletion in Patients With ME/cfs: A Randomized, Double-Blind, Placebo-Controlled Trial (2019) Fluge et al

    Article in Medscape by Miriam Tucker. Log-in is required. Rituximab Fails to Improve Symptoms in ME/CFS
  14. Kalliope

    B-Lymphocyte Depletion in Patients With ME/cfs: A Randomized, Double-Blind, Placebo-Controlled Trial (2019) Fluge et al

    Øysten Fluge, Kari Sørland, Ingrid G. Rekeland and Olav Mella have written this article at the Kavli Trust's webpage. The Kavli Trust has been an important supporter of their research since 2011. The article gives a good introduction to the study for lay persons. No effect of Rituximab...
  15. Kalliope

    B-Lymphocyte Depletion in Patients With ME/cfs: A Randomized, Double-Blind, Placebo-Controlled Trial (2019) Fluge et al

    Here's a summary of the study in the journal for patients: Rituximab for Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
  16. Kalliope

    B-Lymphocyte Depletion in Patients With ME/cfs: A Randomized, Double-Blind, Placebo-Controlled Trial (2019) Fluge et al

    Link to Peter C Rowe's editorial in Annals of Internal Medicine: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Trial Fails to Confirm Earlier Observations of Rituximab's Effectiveness
  17. Kalliope

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Link to that blog post http://www.virology.ws/2019/04/01/trial-by-error-my-berkeley-crowdfunding-appeal/?fbclid=IwAR1zoB4ryHvKdlFGCY7ziIb8wiCxDlnU9AfOA2IYJennaCWEqrE-fpZHxPg
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