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Update from The Comeback Study, a study on ME and faecal transplantation. This was one of 4 research projects that received allocation via the Norwegian Research Council's pilot project on user identified research. The study is taking place at Harstad in Norway. It says (hastily translated by...

MillionsMissing Stavanger is fundraising for their May 12th event and for research into ME by Fluge/Mella and their team. The fundraising will be going until May 12th. There's a webpage at bidra.no where people can contribute via card donations and Vipps. The event at May 12th is already mostly...

It might not be all bad that RecoveryNorge is trying to launch internationally, it means they will also meet scrutiny from more people.

She is working for Direktoratet for e-helse, a department for electronic health, so I hope and believe she's still doing fine.

A Norwegian news site on research has an article today about crowdfunding research. RituxME is used as an example. Olav Mella and the initiator behind a crowdfunding for RituxME, Maria Gjerpe, are interviewed. Forskning.no: Folkefinansiering av forskning: Forskere ber folk flest åpne lommeboka...

Reply from the Research Council of Norway. Pasienter kan styrke forskningen google translation: Patients can strengthen research There is a great deal of disagreement among both ME-patients and researchers about cause and treatment. But too much user involvement is not the problem. The pilot...

Oh, that's interesting.. I had heart palpitations several years ago. The symptoms vanished after I discovered I had hypothyroidism and had been on medication for a while. When I asked my doctor if there might be a connection between the palpitations and hypothyroidism, he just laughed.

I sent you a PM :-)

Thank you for your answer to this thread, @Daisy Wonderful to hear that you've been helped by BB! Good luck next month with the testing and hope you'll be able to increase the dose. Good point on being careful regarding brand. I googled BB at bit, and found an article warning hospitals...

Thank you for sharing your experience, @voner I'm glad to hear you haven't had any side effects and that it has helped you :)

I got turned down for a POTS assessment at my local hospital, but my doctor agreed to try beta blockers to see if they might ease symptoms of orthostatic intolerance. I'll be starting on very low dosage with Selo-Zok (12.5 mg) and increase to 25 mg after two weeks. Am curious to hear if others...

The local newspaper Upsala Nya Tidning has an article about the ME/CFS Collaborative Research Center today. Forskning kring ME får centrum i Uppsala google translation: Research into ME gets a center in Uppsala The Uppsala Center will be the third funded by the Open Medicine Foundation and the...

The Norwegian ME Association, Rogaland County, has worked on a school project on adapted teaching for pupils with ME. The project is now finished and is soon ready to be presented at schools. As part of the project, four short animations have been made. One of them is publicly available, a film...

A letter to the editor from head of department at the children and adolescent's ward at Akershus university hospital. I believe he is prof. Wyller's boss? He says they've had a productive research environment for CFS led by prof. Wyller, but that the funding to this work has been reduced...

This was good and informative. I am sorry that Karin Alvtegen has deteriorated so much that she wasn't able to join in studio. The doctor, Anna Lindquist talked about the importance of separating ME from general fatigue and that patients must not push themselves. Emphasising that this is a...

Good to know, I was wondering why I couldn't listen to the podcast on MEA's website:

That lifted my spirit. Thank you, @Gary Burgess ! Carol Monaghan is organising an ME afternoon tea on Friday in Glasgow :)

Catosenteret is a rehabilitation center for children and adolescents. They've had a programme for CFS/ME patients since 2006. According to their website they focus on process of change and rely on a bio-psycho-social model for CFS. They are not interested in causes for the fatigue, but...

Sounds like a truly horrible situation. I hope you find the right help.

The article is paywalled, so haven't read it, but from the headline the article is about psychiatrist Per Fink needing to travel under false name because activists hate him so much. Apparently it had happened when he went to New York. Don't know if he still does it. Berlingske Tidende...