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  1. Kalliope

    Dismissing chronic illness: A qualitative analysis of negative health care experiences, 2019, L. Jason et al

    Also nice to see they're adding this important background information on GET/CBT Ascribing illness attributions to a psychological etiology and recommending a course of treatment based on these assumptions could have negative effects on the doctor–patient relationship. In particular, graded...
  2. Kalliope

    Dismissing chronic illness: A qualitative analysis of negative health care experiences, 2019, L. Jason et al

    Similarly, other chronic illness patient populations such as fibromyalgia and chronic Lyme disease have also experienced a lack of understanding from their HCP. Physicians’ lack of knowledge, lack of medical training, financial pressures on primary care clinicians’ time, complexity of the...
  3. Kalliope

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    Yes, this is based on the forskning.no article in A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al']post #130[/URL] in this thread, but as @inox says, not quite identical. Odd to see all this coverage of...
  4. Kalliope

    Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents (2019) Chalder et al.

    The findings of this study also indicate the potential importance of a familybased approach to treatment (Lloyd, Chalder, & Rimes, 2012), given that it is other-oriented perfectionism which seems to be different in CFS, rather than self-oriented perfectionism. Furthermore, involving both mothers...
  5. Kalliope

    Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents (2019) Chalder et al.

    I have read this part four times but still don't grasp what is being said here.. Holding unhelpful beliefs about emotions did not differ significantly across groups either, which was also contrary to expectations. This is different to findings in adults with CFS (Rimes et al., 2016; Rimes &...
  6. Kalliope

    Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents (2019) Chalder et al.

    gee, they're really nailing the patient blaming. so not having perfectionism is bad too? A study of adults with CFS found that perfectionism post-diagnosis was not significantly different from healthy adults but their reports of premorbid perfectionism were significantly higher (Brooks et al...
  7. Kalliope

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    The Swedish newspaper Aftonbladet had an article about the study this week. It's paywalled, but I was sent the article, and here's a translation of some pieces from it. Aftonbladet: Studie: Behandling kan hjälpa mot ME (Study: Treatment can help with ME) A Norwegian doctor has tested treating...
  8. Kalliope

    Predictors of chronic fatigue in adolescents six months after acute Epstein-Barr virus infection: a prospective cohort study,2018,Pedersen et al

    it doesn't seem that more has been done with the company besides registering it. but he seems to be part of the "patient" organisation Recovery Norge (for patients who has recovered from ME by their own efforts) and quite a few of the members have financial interests/spouses with financial...
  9. Kalliope

    Predictors of chronic fatigue in adolescents six months after acute Epstein-Barr virus infection: a prospective cohort study,2018,Pedersen et al

    Yes, that's a coaching company. Good detective work, @Esther12 ! The article mentioned he wanted to "help" other ME-patients.
  10. Kalliope

    Predictors of chronic fatigue in adolescents six months after acute Epstein-Barr virus infection: a prospective cohort study,2018,Pedersen et al

    The article also tells the story of a young man who got mononucleosis when he was 18, was diagnosed with ME and recovered after a year of illness with Lightning Process. He believes one of the reasons he got fatigued after the illness, is that he is particularly sensitive. He believes a lot who...
  11. Kalliope

    Predictors of chronic fatigue in adolescents six months after acute Epstein-Barr virus infection: a prospective cohort study,2018,Pedersen et al

    A big newspaper, Aftenposten, has an article today about this study. Aftenposten: 22 unge med kyssesyke er fulgt tett: De som er sårbare, får oftere ME (200 adolescents with mononucleosis have been followed closely: Those who are vulnerable, more often develop ME The article is paywalled, so...
  12. Kalliope

    Literature search on PEM from The Norwegian Institute of Public Health by Lillebeth Larun et al

    Here is a google translation of the method used. The rest of the PDF is links to publications on PEM, most of them are in English. Literature search A systematic search for literature was carried out in February 2019 in the databases MEDLINE, EMBASS, PsycINFO, Amed, ISI Web of Science and...
  13. Kalliope

    Literature search on PEM from The Norwegian Institute of Public Health by Lillebeth Larun et al

    The Norwegian Institute of Public Health has today published a literature search about PEM. The Norwegian ME Association asked them to make an overview of research on PEM in ME in 2015. The literature search was done in February 2019 by Lillebeth Larun (from the contested Cochrane review on ME...
  14. Kalliope

    USA: JAX ME/CFS Center and Derya Unutmaz news

    Video that came with the article. Very powerful. ME patient Shannon and her parents tell her story. Interviews with Lucinda Bateman, Morris Papernik and Derya Unutmaz.
  15. Kalliope

    USA: JAX ME/CFS Center and Derya Unutmaz news

    Solving the mystery of chronic fatigue syndrome For decades, no one has known what causes myalgic encephalomyelitis (ME, commonly called ME/CFS). As a result, this debilitating disease has been very difficult to diagnose and even harder to treat. Now a collaborative JAX research center led by...
  16. Kalliope

    Relationship btwn CFS, burnout, job satisfaction, social support & age among academics at a tertiary institution (2019) Coetzee et al

    Quite small study: In the end, 69 participants (of 1433 personnel members) visited the URL and uploaded their responses to the questionnaires.
  17. Kalliope

    Relationship btwn CFS, burnout, job satisfaction, social support & age among academics at a tertiary institution (2019) Coetzee et al

    From the introduction: Although Hyland has suggested that chronic fatigue syndrome develops because of immunological challenges and lifestyle pressures associated with being an academic, some researchers still confuse it with burnout [3]. Leoneet al.’s [7] findings contribute to this confusion...
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