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The Irish Times: Chronic fatigue syndrome - A comic by Rosa Devine Rosa Devine was a ‘strong and fit’ teen when chronic fatigue syndrome took over her life Article also has a 5-minute video with an interview with Rosa Devine.

Oh, well. It's a public health library offering the service for me then due to the IP address. Thanks for letting me know. Here's a quote I found interesting. CBT is less offered in Victoria than in other states. Wonder why? But the poor kids still have to go through sleep hygiene and GET...

Does this link with the full PDF work for others as well? https://adc.bmj.com/content/archdischild/early/2019/02/23/archdischild-2018-316450.full.pdf

There is also a collection of Stubhaug's articles. Some of them in English, if anyone wants to have a closer look, or perhaps the titles are sufficient.. English articles A 4-day Mindfulness-Based Cognitive Behavioral Intervention Program for CFS/ME Heart rate variability and fatigue in...

Stubhaug has made a new website with more information than the previous one. Under the section for health personell he writes that he prioritise patients with stress medical health issues, and that he has particular competence and treatment offer for fatigue illnesses/chronic fatigue...

This petition has now come to its end. It reached the impressing number of 7265 signatures. They were mailed to the Ministry of Health and Care Services today. The initiator Nina E. Steinkopf has written a blog post thanking everyone who contributed and especially her husband who has supported...

Also, the Swedish ME Association Riksförbundet for ME-patienter has had great ME conferences during the autumn with both national and international speakers. According to their website they are working on a conference for this year as well.

I assumed there would be another symposium at Stanford in the autumn?

It wasn't obvious for me which criteria had been used when the participants were diagnosed. I found this quote: - The clinic has been functioning since 1989. In the early years of the clinic, the Holmes definition and Fukuda criteria for CFS were available

The Norwegian organisation The ME parents has sent a letter to the board of Oslo university hospital regarding the need for a new national competence service for children and adolescents with ME. The competence service is currently being evaluated. The ME parents has published a blog post where...

I think the following was an interesting observation. The range of ME/CFS Functional score for those who reported that they had recovered was compared with those who reported they had not recovered. (Figures 5 and 6) There was a significant overlap. This coincides with what professor Kristian...

I remember him on the front page of the newspaper Dagbladet (I think it was) some years ago before he went to Afghanistan saying he would feel much safer there than working with ME. I was sick to my stomach seeing my patient group described in such way. Tried to find that article now, but the...

That was from memory, so all of a sudden I got a bit unsure.. but yes, she was. Here is a presentation of the NorCAPTIAL team led by Wyller with amongst other Helland. It is via a blog, couldn't find the original source.

Well, Wyller did do a study on treatment with Clonidine Disease mechanisms and clonidine treatment in adolescents in chronic fatigue syndrome: a combined cross-sectional and randomised clinical trial which turned out negative. I haven't looked closely at details on this study, but have not heard...

Actually, the first leader of the competence service was superb. Very updated on research and clear that ME is a severe physiological disease. She didn't last long in that position though, I don't know any details about why. Then came another doctor for a short time which I believe was somewhere...

The leader of the competence service, dr. Helland, used to work with prof. Wyller who believes ME is a form of sustained arousal. He has a study now on music therapy as treatment for ME and applied for funds for doing a study on Lightning Process as well. The latter didn't receive funding, which...

I'm sorry to hear that, @andypants I understand your reluctance :(

Skogli Rehabilitation Center has worked with ME patients for several years. It's disturbing to see their program of an upcoming Network conference for health personell working with CFS/ME in March. Lillebeth Larun seems to still be acknowledged as an authority in this field and why on earth...